pmoreno Posted October 13, 2008 Report Share Posted October 13, 2008 Hello all, It has been 1 week and a day since Gaby had her IVIG and I have been seeing general improvements right along. Yesterday and today she was extremely social and interactive with other kids (a first in a long time). I still hear an occasional odd comment or unusual worry maybe once or twice a day, but her concentration is sooooo much better and so is her mood. No more angry outbursts at this point - still no re-occurence of any tics. I'm almost afraid to relax and enjoy this - afraid it will all disappear. That is my greatest fear - that all this wonderful change will be short-lived and that sometime in the future we'll be dealing with this again. I'm such a skeptic. Anyway - so far so good. Linda, if you read this, if you're thinking of going to Florida instead of Chicago - you would be very happy if you went to Creation's Own in Melbourne and saw Scott Smith the P.A. for Dr. Bradstreet - they're wonderful there and would do IVIG if you want. Also, they're extremely informative about PANDAS, are very up-to-date on diagnostic tools and don't believe in covering symptoms with a lot of psychotrophic meds. Pat Link to comment Share on other sites More sharing options...
amy s Posted October 13, 2008 Report Share Posted October 13, 2008 Pat, So good to hear your news about your child. Thank you for posting an update. Link to comment Share on other sites More sharing options...
bmom Posted October 13, 2008 Report Share Posted October 13, 2008 Thanks for keeping us updated Pat. I pray that you never have to worry about this again. Link to comment Share on other sites More sharing options...
bmom Posted October 13, 2008 Report Share Posted October 13, 2008 Pat, I have a question on your daughter: The tics she was doing, were they frequent like tourettes and did they ever change or always stay the same. I know you mentioned her hands in a claw. My son does this or a hand clench. He also does hard blinks and small cough, but they have changed over the last few months and I was just wondering about your daughters as we will be doing IVIG soon too. Also, did you ever notice the dilated eyes and have these gone away? Link to comment Share on other sites More sharing options...
Dedee Posted October 13, 2008 Report Share Posted October 13, 2008 Pat, I am so happy to hear that Gaby is doing better. Whenever I hear of a child receiving treatment that is helpful, I rejoice. It's great that we have this forum to share information. I am sure your experience will help someone else. My hope is that there will soon be a recognized plan of care for these children, and we are getting there one child at a time. Thanks for sharing. Dedee Link to comment Share on other sites More sharing options...
amy s Posted October 20, 2008 Report Share Posted October 20, 2008 Pat, How is your dd doing now? I hope so much that you still have progress! Keep us posted when you get a chance. Link to comment Share on other sites More sharing options...
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