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Jennifer,

I thought it was interesting that your son had glomerulonephritis. When my dd was 3 (she is now 7) she had glomerulonephritis. Her titers at that time did not test positive for strep but it was attributed to other autoimmune causes anyway (she'd had a stomach virus earlier that week- with vomitting and diarrhea). Anyway, we believe she has PANDAS now. You can read her story under my introduction, I'm a new user of this website- forum so the post isn't too far back.

I hope you and your son can get help soon. This is really hard. I know you know that, though. Hang in there. I wish this board didn't have to exist, but because it does so many people have a place to come to bounce ideas and to also see they are not alone.

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