PANDAS STREP

[Lotusgirl71]

I am curious - is your child who is dx'ed with PANDAS always on antibiotics?

Did your child ever show an increase in symptoms but tested negative for Strep? Did you have titers checked?

If tested negative did you get a round of antibiotics anyway and did it make a difference?

 

Is your child taking any other medications?

 

Any other helpful information you may have.

 

Thank-You

[P_Mom]

Question 1: yes

 

2: yes

 

3: yes

 

4: yes, made a big difference with older son

 

5: no, just supplements

[emma1]

Hi! My daughter is on long term low dose antibiotics (Pen VK). We also use Inositol (1 gram) for ocd issues. I have tried other things, such as magnesium, and do use epsom salt baths or foot baths when symptoms flare. Generally she is doing fabulous. Recently, however, she came down with a horrible virus -- not strep -- and symptoms flared again. She has started a stronger antibiotic to get rid of infection, and will then go back to the Pen VK. She is now feeling much better (physically well, really), but I do still see some symptoms, which is kind of depressing, as she was symptom free for months! We initially went on low dose antibiotics because there was a night/day difference once on them. Nothing else seemed to work. Her titres were quite elevated when she started, but we haven't checked them recently.