antibiotic

[bmom]

I think I am beginning to see a slight pattern here and was wondering if anyone else has noticed this. My son seems to be much better today than yesterday since he started the antibiotic, but the first half hour or so after he takes it, his ticcing increases quite a bit. I would say 5-10 minutes after he takes it, his tics increase. Though he is doing better overall and almost tic free for quite awhile before I gave him his antibiotics, he tics for a short while after taking them.

[P_Mom]

What is he taking it with? Or is it a liquid? If so, what color is it? My son used to increase after taking his Pen, but it wasn't the Pen that was doing it, it was the OJ he was using to swallow the pill with.

 

Kelly

[bmom]

He is just taking it with water. I thought I was on the right track with the antibiotics, yesterday day he was much much better. Of course it was a very mellow day with just me and him-no friends over, low excitement. Then last night he was bad again. He had baseball and the excitement oould have brought it out. although it started while getting ready for ball and right after taking antibiotics. It was also after dinner which was a salami sandwhich that he really wanted and I was trying to keep things mellow so I caved. Maybe nitrates causes him problems. When he first had his outburst a year ago, I cut out nitrates as he loved salami and I thought it could be the culprit. He ate a lot of it then and hot dogs. They have gradually snuck back in as they didnt seem to cause problems. here and there. Also, he was on Pen, but I got some Zithromax yesterday from his natropath which he thought would be better. I gave that to him last night before baseball. He said his tummy problems during ball. His natropath thought strep was in his system due to a test that she puts on his finger to tell.not blood- hard to explain. Should I go back to the Pen, stay on Zithromax, or stop antibiotics? I just dont know if I am on the right track now. It is all so frustrating. He also has been drinking a water- no juice or anything else I noticed. I didnt say anything to him about it, but last night he told me he feels like he has to drink water. I asked him if he is really thirsty. He said no, I just feel like I have to drink water. That scares me, what is that all about?? I usually restrict his "WII" system to a half hour in the morning and half in afternoon only on weekends. On Sunday he played for about 4 hours as he got a new game and I was gone most of the day-not able to superivise and the supervisor didnt restrict. Could the excitement of the new game and all the playing time have caused all this? Also I noticed an increase with the Pen when he would first take it, then die down. It is white capsule. The Zith is pink with flavoring and when he took that, it did not die down all night. I just do not know what to do. He was doing the mouth opening about every second. Thanks for anyones opinion. I just get really frightened when he is so bad. One other note, he got in bad trouble Sunday night- he usually hardly gets in any trouble, but his attitude was very bad. He was grounded from his WII on Sunday which caused him a lot of anxiety and crying. The tics slowly started on Monday, so did my sore throat. I cant figure out if it is the strep, Wii playing, nitrates or upset that is causing it all or everyhthing together. Uggghh. We are back to where we were last year-ticcing every second. One more note=sorry to ramble. It was about the same time of year as last year. This time March, last time Feb, that the outbreak happened. Could it be something in the air as he is an allergy child. We have done NAET to desensitize, but I am not if it worked. Thanks sooooo much for ideas. I just am at a loss as where to go.

[P_Mom]

Bmom,

I can't stress enough that I really strongly believe that you are dealing with PANDAS and you need to get his titers run now!! You will continue to go back and forth wondering what the heck is happening, but, you have a golden opportunity to get the titers tested now that strep is around before titers go back to normal..many people do not get this opportunity and miss the chance. Please..just go get the tests...it can't hurt. Also, baseball has been a HUGE trigger for my older son..sometimes only ticcing during ball..it is the excitement and idle nervousness of it all..and, yes, he would start to tic as he was getting dressed at home..he is PANDAS. Stay on the Zithromax and finish the whole dosage..don't take any chances that strep is there and then not be eradicated...also..be patient...the inflamation in the brain takes time to subside and it could take a while..it is not an overnight disappearance of symptoms. ...my kids took MONTHS for the symptoms to completely go away..although antibiotics dramatically reduced them initially...symptoms still lingered and would come out in times of stress, excitement,etc. for months after, and I mean months. When my younger son was in episode..he drank constantly,,same thing you described..he just always wanted something to drink. Stay on this track with the antibiotics...take one thing at a time..if you try to jump all over the place trying to figure this out..you'll drive yourself nuts. (I did that too in the beginning) Yes, everything you described can make things worse..the games, baseball, getting in trouble etc., those kind of things can bring this all out..but, it does not mean that this is not PANDAS, I believe PANDAS is the root cause and everything else just makes it worse. Over time, these triggers will die down and your son will be able to tolerate these things again, as long as strep is eradicated from his system and kept away. When my older son was in episode..artificial colorings made him worse, now he can handle it, but, I have decided to eliminate all that garbage anyway. Zithromaz can sometimes cause stomach upset...try to stay on it regardless unless it gets real bad..it should subside..oh, taking it with food should help that problem. Also, it was the same time two years in a row that my kids got strep..it was the strep not anything in the air..after strep though..these kids are more sensitive to things for awhile and their allergies and/or sensitivities can get worse.

 

Go get those tests!!!!

Kelly

[bmom]

Thanks so much Kelly- your like a life preserver these days. And yeah!!!! I got the titers run yesterday. He was already on antibiotic for 24 hours. Do you think that will scew it?

[P_Mom]

GREAT!!!!! No, being on antibiotics will not mess with the results.

 

Sorry I was rambling about those titer tests..I didn't know you got them done already.

 

Kelly

[bmom]

Just more to add. You are so right. The doctor said strep is going around right now. Something to do with cold air warming up causes problems. And yes, that would have been the same thing last year-warm air vs cold. Also, after the initial outbreak last year, his allergies were very bad for awhile- that is why we started NAET. So I will take some deep breaths and stay the course. Thanks. Alright perhaps I will also eliminate that nasty salami too. Who needs that junk!!!