kitkatlilly Posted June 30, 2021 Report Share Posted June 30, 2021 Is 0.5g per kg of IVIG considered High Dose and a safe dose for Pandas? Link to comment Share on other sites More sharing options...
Eliself Posted June 30, 2021 Report Share Posted June 30, 2021 No, it’s usually not considered high dose. 1g/kg seems to be a common minimum for high dose, though some PANS doctors feel that’s still too low. Whether 0.5g/kg is safe and effective for PANS is unknown. Everyone responds differently. If the patient has immunodeficiency, low dose is often helpful. Link to comment Share on other sites More sharing options...
kitkatlilly Posted June 30, 2021 Author Report Share Posted June 30, 2021 Ok thanks, I don't have immunodeficiency, but the neurologist that I have recently started going to, he said I am the first person to be treated for Pandas by him. so he was going to do the dose that he has done for all kinds of other autoimmune disorders that he has treated Link to comment Share on other sites More sharing options...
kitkatlilly Posted June 30, 2021 Author Report Share Posted June 30, 2021 (edited) But I have heard by other people that 0.5 is low dose and will make things worse. Edited June 30, 2021 by kitkatlilly Link to comment Share on other sites More sharing options...
kitkatlilly Posted June 30, 2021 Author Report Share Posted June 30, 2021 (edited) 17 minutes ago, Eliself said: 6 minutes ago, kitkatlilly said: . Edited June 30, 2021 by kitkatlilly Link to comment Share on other sites More sharing options...
kitkatlilly Posted June 30, 2021 Author Report Share Posted June 30, 2021 Just now, kitkatlilly said: 4 minutes ago, kitkatlilly said: Ok thanks, I don't have immunodeficiency, but the neurologist that I have recently started going to, he said I am the first person to be treated for Pandas by him. so he was going to do the dose that he has done for all kinds of other autoimmune disorders that he has treated Link to comment Share on other sites More sharing options...
Eliself Posted July 2, 2021 Report Share Posted July 2, 2021 If your neurologist is using that dose successfully for other autoimmune diseases, I’d say it’s worth a try. Good luck! If it doesn’t help, the 2017 JCAP PANS treatment guidelines provide IVIG dosage recommendations in part II “use of immunomodulatory therapies.” Link to comment Share on other sites More sharing options...
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