Synapsin nasal spray

[MaryAngela]

I saw one positive post on Synapsin nasal spray.  My DS 15 will be starting it today. He was a severe PANS case.  OCD and tics 80% gone from almost 2 years of monthly HD IVIG.  He still has focus, anxiety and executive functioning issues.  I’m wondering if anyone else has tried it, and how it worked out.  

[jan251]

Is this available only through a study, or do you have a prescription?

[MaryAngela]

It is prescription.  It’s made at a compounding pharmacy. I was hoping my DS would start last Saturday, but it wasn’t shipped when I thought.  Should arrive tomorrow.  I’ll keep you posted.  

[worriedmom123]

Any progress with Synapsin?

[MaryAngela]

@worriedmom123  We only used the Synapsin for 1 month.  My son said he would feel a “sudden jolt of happiness” immediately, but we were hoping for more help with his focus during school. I didn’t refill the prescription, because DS had a sinus infection and I didn’t want to use it then.  We will probably try this again in the future.