MaryAngela Posted September 14, 2019 Report Share Posted September 14, 2019 I saw one positive post on Synapsin nasal spray. My DS 15 will be starting it today. He was a severe PANS case. OCD and tics 80% gone from almost 2 years of monthly HD IVIG. He still has focus, anxiety and executive functioning issues. I’m wondering if anyone else has tried it, and how it worked out. Link to comment Share on other sites More sharing options...
jan251 Posted September 18, 2019 Report Share Posted September 18, 2019 Is this available only through a study, or do you have a prescription? Link to comment Share on other sites More sharing options...
MaryAngela Posted September 18, 2019 Author Report Share Posted September 18, 2019 It is prescription. It’s made at a compounding pharmacy. I was hoping my DS would start last Saturday, but it wasn’t shipped when I thought. Should arrive tomorrow. I’ll keep you posted. Link to comment Share on other sites More sharing options...
worriedmom123 Posted April 17, 2020 Report Share Posted April 17, 2020 Any progress with Synapsin? Link to comment Share on other sites More sharing options...
MaryAngela Posted April 17, 2020 Author Report Share Posted April 17, 2020 @worriedmom123 We only used the Synapsin for 1 month. My son said he would feel a “sudden jolt of happiness” immediately, but we were hoping for more help with his focus during school. I didn’t refill the prescription, because DS had a sinus infection and I didn’t want to use it then. We will probably try this again in the future. Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now