PANS and prophylactic antibiotics

[MountainMom]

I'm wondering- If your child has a PANS diagnosis, and not a PANDAS one, is your child on prophylactic antibiotics? 

My son, who has been on antibiotics since August and was doing really well, began flaring a couple of weeks ago (the usual but with new OCD symptoms). This isn't as severe as his last one, so I guess that's progress, but the doctor is titrating him off his antibiotics (Zithromax and Malarone). She wants to see if he improves off the antibiotics. Does this make sense?

Thanks for any help!

[bobh]

I don't know how to judge "what makes sense" when we don't know too much about how the immune system really works for PANS.  Maybe your doctor has some theory about the gut on long-term abx - but theories are speculative, the proof is in the pudding. So, if something changed for the worse, then changing something to see an effect makes a kind of sense.

 

[MountainMom]

Thanks, bobh. We will see what happens. I'm starting to feel like there's nothing I can do.