Any support groups/other members in the Duke area?

[puzzledguy]

I'm a student at Duke, living on my own. My parents have completely given up on my health and dropped out of the picture--I'm all alone and really need other flesh-and-blood faces to meet with and get support from. Just reading about research online is no substitute for actual friends who understand.

[bobh]

So sorry about your situation.  I have no connections in that area, but you might also try to see if any of the practioners in North Carolina have sites or facebook groups where patients connect.  Here is a list of some providers:

http://www.pandasnetwork.org/research-resources/us-providers/#NORTH CAROLINA 

 

[puzzledguy]

Unfortunately the only one anywhere near me is Dr. Aureen Pinto-Wagner, and it seems she doesn't do anything with immunology or the other physiological aspects of PANS. I already have a psychologist and a psychiatrist in Durham, what I need is help with getting to the bottom of gut/food sensitivities.

I will contact her anyway, in case she knows of any support groups for people with biomedical in addition to psychological issues, but I'm not too hopeful.

Edited December 12, 2017 by puzzledguy