nitshel Posted November 4, 2017 Report Share Posted November 4, 2017 So we got a blood test done for DS 10 days ago who is going through a bad flare and it came back positive for Mycoplasma. He got 5 days of Azith from Pediatric doc but it’s had near zero effect. We want to go to a PANS doc and ask for something stronger- any suggestions on what could work best? DS is 12 yrs old thanks! Link to comment Share on other sites More sharing options...
nitshel Posted December 23, 2017 Author Report Share Posted December 23, 2017 Adding update. Doc had DS on Clarithomycin with no effect after 2 weeks. Then switched to Minocycline. Titers for Myco are still over 5000(!). Any ideas on how to bring it down? Is this just a misguided immune system producing antibodies or is there really an infection that the body cannot shrug off despite multiple abx? Link to comment Share on other sites More sharing options...
Sirena Posted December 25, 2017 Report Share Posted December 25, 2017 My advice—get to a lyme literate doc, they are more familiar with Mycoplasma treatment. Link to comment Share on other sites More sharing options...
nitshel Posted December 26, 2017 Author Report Share Posted December 26, 2017 Well, we are being treated by Dr B who knows about Lyme- we just did another Igenix test - let’s see what comes out of it. But right now it’s a daily battle... Link to comment Share on other sites More sharing options...
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