Southern California Adult PANDAS Dr Needed

[Jesse]

Hi everyone,

I'm looking for a PANDAS doctor in Southern California who will treat adult patients and is willing to prescribe PEX, CellCept, Immuran, Rituximab, Prednisone, in addition to IVIG and antibiotics. 

I'm new here. 31 year old man who fell ill with an upper respiratory infection December 2016. I recovered from the acute phase, but a set of debilitating symptoms followed:

• Anxiety / depression / irritability
• Physical fatigue and low stamina 
• Physical weakness and malaise
• Increased heart rate on standing and walking
• Chest pain
• Breathlessness w/ exertion
• Dizziness / lightheadedness on standing
• Cognitive dysfunction
• Light sleep

I have been on IVIG for 4 months at increasing dosages (up to 105g now) with some good improvement. I am also taking 5mg of LDN and many supplements.

The chest pain is 99% gone, I can drive, walk 2-3.5k steps a day, have less malaise, and cognitive dysfunction. However I am still unable to return to work so I'm looking for a doctor who can help me continue my healing with second line treatments. 

Relevant lab findings

Type	Component	Reference Range	Value
Cytokines	IL-6	0 - 5	80
	IFN-y	0 - 5	40
	TNFa	<=22	58
Metabolites	Pyruvate	2/8/17: <= 6.4; 6/8/17: 7-32	15.9
	Cis-Aconitate	2/8/17: 18 - 78; 6/8/17: 10-36	<DL
	Isocitrate	2/8/17: 39 - 143; 6/8/17: 22-65	13
Auto Antibodies	Anti alpha-1-adrenergic antibodies	<7.0 U/ml: negative	10
	Anti-muscarinic cholinergic receptor 4 antibodies	5.0-7.0 U/ml: at risk	6.9
	Intrinsic Factor antibodies	0.1-1.2	1.19
	Myocardial Peptide antibodies	0.1-1.5	1.89
	Thyroid Peroxidase antibodies	0.1-1.3	1.4
	Thyroglobulin	<=1.0 U/ml	6
	Thyroid Peroxide antibodies	<9 IU/ml	15
	Anti-Dopamine Receptor D1	500-2,000	1:32,000
	Anti-Dopamine Receptor D2L	2,000-8,000	1:32,000
	Anti-Lysoganglioside GM1	80-320	1:1,280
	Anti-Tubulin	250-1,000	1:16,000
	CaM Kinase II	53-130	130
	Rheumatoid Factor IGM	>6	11
Pathogens	Coxsackie B4 virus	<1:10	1:640
	Mycoplasma pneumoniae IgM	<770 U/mL	1327
	Yeast	None, rare, few	Many
	DNSB 0050220 (Strep)	< 260 U/mL	268
	`
Immunological	Natural killer cells functional	7-125 LU30	9

Edited August 27, 2017 by Jesse