EBV/PANS

[Beachykeen]

How many of you/your kids have high EBV titers and/or chronic active EBV infection?

 

If so, how have you treated this? Have you found it helpful in improving the overall PANS symptoms picture?

 

Thank you!

[Gpookie]

2 PANS kids plus mom (nonPans).

 

Long-term Valtrex addressed it. Brought down viral load....

Edited December 12, 2016 by Gpookie

[Ladymavs]

Is HHV6 treated similarly to EBV? We tested negative for EBV, but high for HHV6. Currently using minocycline for mayo, but curious about adding an anti-viral.