Plum99 Posted September 4, 2016 Report Share Posted September 4, 2016 (edited) . Edited September 23, 2016 by SSoda Link to comment Share on other sites More sharing options...
jan251 Posted September 4, 2016 Report Share Posted September 4, 2016 (edited) She is very young; you have time. Many of us undergo a mourning process when we reach that lonely place where we realize that the mainstream, inside-the-box medicine can't help our kids. Have you made an appt with a PANDAS specialist yet? I know the waiting is hard. Be thankful that she is not school-age yet. Be patient with yourself - you will need strength for the journey to get to the bottom of this. Edited September 4, 2016 by jan251 Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted September 5, 2016 Report Share Posted September 5, 2016 I would make an appointment with a PANDAS/PANs specialist ASAP. And in the meantime, I would give her ibuprofen (Motrin) and antibiotics to the extent she can tolerate them. Frankly, it doesn't sound as though things could get much worse, and you have some evidence that at least the ibuprofen can help, and that the abx have helped some of her symptoms in the past, if not all of the behaviors. Hang in there. We're here for you. Link to comment Share on other sites More sharing options...
Plum99 Posted September 5, 2016 Author Report Share Posted September 5, 2016 (edited) . Edited September 23, 2016 by SSoda Link to comment Share on other sites More sharing options...
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