Feeling worried that too many antibiotics are wearing my daughter down

[Plum99]

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Edited September 23, 2016 by SSoda

[jan251]

I can't answer your question about the antibiotics, but I would generally tend to blame the immune system, especially when there are things like bruising going on. When you go to the doc, have a CBC included in the bloodwork to check platelet levels. Though come to think of it, if you are doing a lot of motrin, maybe that's the cause.

 

Gut health is still a big mystery for me and it is part of my kiddo's pans/pandas. We had a problem with s. boulardii (as in florastor, though we were using a different brand), for example - it immediately, like within hours, exacerbates ocd for my ds.

 

For the UTI, a positive test usually indicates e coli, yes? I would add in D-mannose, which can be very effective.

 

Vitamins are such an individual thing (for example, we now think that my dd, who has a bunch of genetic mutations and polymorphisms such as compound heterozygous for mthfr, needs to avoid folic acid, which is in many multivitamins not to mention food).

 

Good luck with the doc - I hope next week gets here soon!

[Plum99]

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Edited September 23, 2016 by SSoda

[Gpookie]

Is it enterococcus as in Strep D? My son's had that last winter and when we added clarithromycin they went from 80% to 200% and have held. Apparently it was resistant to all other antibiotics... That is when we turned the corner with PANS/PANDAS. Massive detox efforts helped make the change, too, but the biaxin was our miracle after 3 years of good steady improvement with IVIG and Augmentin.

 

Our pediatrician took the time to really research the best antibiotic for it.

 

Good luck.

Edited August 8, 2016 by Gpookie

[jan251]

How lame that they told you "just a bacteria." I assumed it would be e. coli because that's the most common cause of UTIs, and accordingly, would be what the culture was testing for. That doesn't mean there aren't other types of infections, of course. For a UTI, I'd strongly consider adding D-mannose (comes in tasteless/sweet powder or capsules).

 

Is treating the UTI the only purpose of the current antibiotics? I suppose it's possible for that infection to be the primary problem but I might wonder what else is going on that could be causing PANDAS symptoms. Have you done strep titers?

 

Some kids can also be sensitive to the type of probiotic. What are you using - maybe switch it up?

[Plum99]

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Edited September 23, 2016 by SSoda

[Plum99]

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Edited September 23, 2016 by SSoda

[Plum99]

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Edited September 23, 2016 by SSoda

[Plum99]

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Edited September 23, 2016 by SSoda

[Gpookie]

We swabbed them all over and it came back positive for perianal Strep D. Sent out the culture and the only sensitivity was to the Clarithromycin.

 

I also pointed out spots I thought looked like impetigo, but I was basing that off of google pictures too, and she really has had one rash or another for the last year. I could have been wrong for sure. There wouldn't be a reason for that to be connected, would there? Like she wouldn't get it on her skin and urinary tract? Because my son also had the same blister type spots in his leg for quite a while, while my daughter had them on her arm and face. Basically my kids are a mess.

[Plum99]

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Edited September 23, 2016 by SSoda

[jan251]

One of my kids had strep as a baby - which isn't supposed to happen - and the ped swabbed the rear end (based on symptom of mucus in diaper). But we never swabbed panda kiddo's rear end.

 

For what it's worth, sacchromyces boulardii is the one probiotic that is horrible for my ds, though I'm sure others here have had better luck with it. It just did something too upsetting to the microbiome for him and the ocd onset was potentially related to when I started giving it to him. It was really weird and I never quite figured out that angle.

[Plum99]

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Edited September 23, 2016 by SSoda