PANDAS/PANS/TS 8yr old - Help and Doctor ref needed !

[vvny]

Hi Everyone

 

I have recently come across this forum and I have found so much information on PANDAS/PANS/TS. But I am clueless where to start.We live in NY and have a 7yr old son who possibly has PANDAS now PANS and maybe TS ? He always had one off tics as a kid but they all got worse after a strep infection last year in FEB.Since then he has always had tics , flare up of tics and anxiety and more tics but only one strep since last year .His tics are better when he is on antibiotics which we really don't want to give him anymore ! He is on Gluten free diet and mostly dairy free . He has no food allergies as he has tested negative for gluten , dairy and all other foods. His blood work always comes back normal for strep and mycoplasma. But he has tics and other anxiety and behavior issues so we are confused.

We are trying homeopathy since last year and we have not seen any good results .He is taking high doses of omega3 and other supplements and magnesium and those have helped him to some extent but not much during flare ups.Even the antibiotics don't take away his tics completely.He had good 3 months of tic free before this current major flare up since past month !

 

We finally made an appointment to see Dr.Bock in Rhinebeck,NY.Any success with him ? Or is there an alternate Dr. who could help us better who would do complete blood work , gut eval etc needed to go to the root cause of his issues ? Any recommendations for a good homeopathic doctor is also greatly appreciated .

 

I know many of you have had great success with alternative treatments for PANDAS/PANS/TS and if there is any particular Doctor who practices alternate medicine or homeopathy who has had success with such cases please please let me know.There are so many names out there , so many treatment options ,so many tests etc to be done and we are clueless as to where to begin and we have been trying few things here and there but nothing with great results where we know what triggers his tics and how to control them ! We are willing to go out of state if needed.We cannot see him suffer so much daily and we feel so helpless !

 

Thanks for all your replies in advance.

 

Best

Vvny

 

[MomWithOCDSon]

Did you check the "Doctors Who Have Helped Us" in the pinned threads at the top of this forum? Here's a link:

 

http://latitudes.org/forums/index.php?showtopic=5023

 

We're half-way across the country so we've never personally consulted with Dr. Bock, but I have heard him speak at conferences, had a brief one-on-one chat with him, and read his book, "Healing the New Childhood Epidemics: Autism, ADHD, Asthma and Allergies," and he is VERY impressive. I also had the opportunity to share lunch and a long conversation with a family who's son Dr. Bock treats, and they had nothing but great things to say about him and about how successful his care protocols have been.

 

I know there are several other doctors in the NY/NJ area that are well known in PANDAS circles (Dr. Triffeliti, Dr. Nicolaides, etc.), but, if you run a search here on the forum for threads regarding some of these docs, there seems to be some concensus that they can be a bit overwhelmed and hard to get in touch with as a result. Meanwhile, I've not heard those complaints regarding Dr. Bock, and I know his entire practice -- including a well-respected partner -- is based on integrative medicine for children. Seems to me you've got a good lead there.

 

All the best!

[vvny]

Dear Nancy

 

Thank you so much for taking the time to read my son's case and reply ! I feel better now after hearing good things about Dr.Bock . We hope he will lead us in the right direction after trying so many things this past year and nothing seems to help him that much. I will surely keep everyone posted on the updates and hope to share some information as well .

 

I only wanted some reference for any homeopathic doctors who might help with PANDAS?

 

Thank you again.

Vvny