Pandas_dad Posted May 19, 2016 Report Share Posted May 19, 2016 Was wondering how many of you have tried this an had good or bad results. Which companies are best as there are a lot of them these days. Link to comment Share on other sites More sharing options...
LNN Posted May 20, 2016 Report Share Posted May 20, 2016 I know some parents have found it very helpful - but not sure in what ways. I don't get the impression it stops flares but maybe helps some aspects, especially in terms of anxiety and inflammation. Hayleigh's Hope is one that I've heard recommended. Link to comment Share on other sites More sharing options...
tj21 Posted May 20, 2016 Report Share Posted May 20, 2016 We've used CBD oil from Bluebird Botanicals off and on. It helps at times, but not during a flare, for us. 15 drops 2x/day for ds16 who weighs about 160#. My husband takes same (weighs less) and says it helps him but he doesn't have PANS. Older topic here: http://latitudes.org/forums/index.php?showtopic=22539&hl= Link to comment Share on other sites More sharing options...
AnnR Posted June 13, 2016 Report Share Posted June 13, 2016 Just started it this weekend and seeing improvement in all 3 of my kids, but the it is most apparent in my most severely affected DS. The irritability is almost gone and he can even tell me that he feels less anxious. Very low dose, 5 drops in a capsule. His PANDAS psychiatrist was open to us trying it. I used Bluebird brand, based on another parent's posting in this forum because I had no idea which companies were more reputable. Now I am just trying to figure out what time to give the second dose, as it doesn't last the whole day. Link to comment Share on other sites More sharing options...
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