pr40 Posted March 31, 2016 Report Share Posted March 31, 2016 abx do not seem to help when long term symptoms of lyme are present. at least, scientists are beginning to be aware of this and will, hopefully, look for more effective treatment. http://www.medpagetoday.com/InfectiousDisease/GeneralInfectiousDisease/57044 Link to comment Share on other sites More sharing options...
lw47 Posted March 31, 2016 Report Share Posted March 31, 2016 This is a very bad study. 12 weeks of antibiotics does not constitute long term treatment for someone with Lyme disease for years. I had Lyme disease undiagnosed for 9 years, and was treated by a LLMD for 4 years with excellent improvement. I am off antibiotics now and doing well. 12 weeks of antibiotics is nothing for someone with chronic Lyme. Infectious disease doctors are some of the worst for posting studies nay saying treatment of chronic Lyme. There is hope. I am proof of it. rowingmom and pr40 2 Link to comment Share on other sites More sharing options...
sf_mom Posted April 3, 2016 Report Share Posted April 3, 2016 Me too..... living proof that long term antibiotics were extremely helpful to my recovery from chronic Lyme. I probably picked up Lyme as a child. Tons of tick exposure growing up in MN and camping with my family. 3 years of treatment, almost 3 years in remission. I am healthy, healthy, healthy and leading a normal life again. I do a lot to keep things in remission but do not need ongoing antibiotics. My symptoms were MS/Fibro like: mild seizures, headaches, joint pain, tremors, fatigue, etc. ALL GONE. All 3 of our children have also had amazing recoveries and have been on long term antibiotics. Treatment has saved their lives and reversed all spectrum systems for our 8 year old twins and all PANS symptoms for our 12 year old son. It has been a long path to recovery but our kids are thriving! I am enterally grateful to the Dr.'s that were willing to treat our children with long term antibiotics. LNN 1 Link to comment Share on other sites More sharing options...
mama2alex Posted April 4, 2016 Report Share Posted April 4, 2016 (edited) Here is LymeDisease.org's rebuttal of this study: Chronic Lyme European PLEASE Trial - You Know It's Spin When Treatment "Success" is Called "Failure" https://www.lymedisease.org/lymepolicywonk-lyme-european-please-trial-you-know-its-spin-when-treatment-success-is-called-failure/ "Please" don't believe the IDSA propaganda without doing a lot of research. Edited April 4, 2016 by mama2alex Link to comment Share on other sites More sharing options...
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