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AE -- brain on fire


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oh - so sad -- or not -- that I can't remember the key words I need to find an old friend on here. not that I don't love you all who are forever part of my heart -- but I am glad some things have slipped my brain!

I think it must be like the pain of labor slips from your mind -- the trauma of PANDAS and all the research and info you think you can't get away from somehow recedes from you mind.

 

who and where is my old friend with many children and a beautiful daughter who struggled so very much until being more properly diagnosed with I think - some more specific form of autoimmune encephalitis? I have someone whose child has struggled amid many treatments and I am trying to remember some of this info.

 

Thanks!

 

 

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