lyme/bart/babs - when did you see relief from OCD?

[jan251]

If you undertook lengthy antibiotic treatment for lyme and co-infections, at what point in the course of antibiotics did you see *any* sign of improvement in OCD, even a little, such that you then knew you were on the right track? (years/months/weeks/days, whatever it was)

 

If there was one treatment/med in particular that began to bring improvement in OCD, even a little, what was it? How long was it before that little bit of improvement became apparent?

 

If you did both antibiotics (including herbal antibiotics) and IVIg, do you think they may have both been necessary? In what order did you do these treatments and would you do it over again differently?

 

(Prior positive results for strep, myco, lyme, suspected bart and babs; 5 months of multiple pharmaceutical antibiotics and a few months of herbals with no improvement in OCD and no other symptoms to go by. Mulling over trying IVIg vs. a return to more antibiotics on the order of 18 months to two years, but that doesn't seem like the right path when there has been zero effect on OCD thus far. Other than OCD, lyme and co-infection symptoms are so minimal that they are not present except as possible herx symptoms during treatment. I am also wondering whether IVIg might be useful in combination with antibiotics. We are pondering IVIg while awaiting more test results that include some repeat titers.)

Edited October 30, 2015 by jan251

[mama2alex]

We saw improvement for 7 weeks, begining about 6 weeks post high-dose IVIG, but the gains vanished with the first virus he caught. We started seeing gradual, but sustained gains after we started to treat for Lyme and co-infections 15 months after initial sudden onset of PANDAS/PANS. We first saw noticeable improvement in OCD and anxiety after his first 6 weeks of treatment, on Alinia and Rifampin. For the most part it was extremely slow and gradual improvement over years, with two exceptions. We saw big gains after we'd treated him for mold for a few months (and moved out of our moldy house). We also made huge progress on school anxiety/refusal after 3 weeks of intensive therapy at Rothman in Florida (3 years after starting Lyme tx). He recently went off abx after 5 years of treatment for Lyme, mold, viruses, methylation, parasites, etc. He is still taking a number of herbals as well as all of his supplements. So it's been a long haul and we've addressed many issues in many ways, but he's doing great and does not have flares with illness.

 

If Lyme, etc treatment isn't working, I would look into methylation and mold toxicity. Mold is often overlooked and for us was a big contributor to anxiety and OCD.