One month post tonsillectomy & doing great!

[Sirena]

Or DS, who just turned 7, had a tonsillectomy one month ago as advised by Dr.L. Dr.H at GU did it and sent samples for DNA based identification. Based on the results, DS was given azith on top of the clindamycin he's been on. Just this week, our kiddo is back!! Such a blessing! I know we are fortunate bc this started for us in Mid-May so in the big scheme of things--we got pretty lucky figuring it out and getting the right help.

 

We still have emotional and behavioral "fall out" to deal with -meaning some bad habits that were acquired--but I think that is all manageable if we can maintain the gains. So thanks to everyone on this board. Your support and hard won wisdom and advice has been our guiding light and absolutely Indispensible. I realize that this might not be the end of it all so I will continue to rely on your collective wisdom. Wishing you all strength, hope and perseverance.

Sirena

[mama2alex]

Glad to read such positive news! How's he doing? Still improving I hope?

[Sirena]

Hi Mama2alex,

We are now two months post T&A and unfortunately, PANDAS symptoms are kicking up again. We are now working with his doctor to do IVIg-hopefully soon. I will say that things are still better than they were before the T&A (for example, so far we are able to all live in one home and don't have to keep our DS and DD in separate living situations for their own safety). But, of course we want to get full remission and don't want to let it get worse again. Our DD has an ear infection the last couple weeks (and we're getting her swabbed for strep again to be safe) and a virus has gone through the household, so perhaps there's an explanation for the exacerbation but its so crazy making to see him suffer so.