Michel12 Posted August 27, 2015 Report Share Posted August 27, 2015 Many of you have said to rule out other autoimmune encephalitis. What kind of tests did you do? My doctor is giving me the mayo clinic autoantibodies panel. Link to comment Share on other sites More sharing options...
pr40 Posted August 28, 2015 Report Share Posted August 28, 2015 from what I know about encephalities, I don't see how antibody panel can tell you if you have it brain scan is usually used but they are not conclusive panel can tell you about the causes of the encephalities If I remember correctly, your symptoms may fit the encephalities diagnosis i would say this is encouraging that dr wants to check autoantibodies, can't hurt, right? except for the needle, of course good luck Link to comment Share on other sites More sharing options...
PowPow Posted August 30, 2015 Report Share Posted August 30, 2015 That is good. It is probably NMDA, GAD, VGKC, maybe some others. How about lupus or anti-phospholipid antibodies? My daughter has antiphospholipid syndrome. AEALLIANCE. ORG. Might have lots of information for you, Michel12. Link to comment Share on other sites More sharing options...
Michel12 Posted August 30, 2015 Author Report Share Posted August 30, 2015 That is good. It is probably NMDA, GAD, VGKC, maybe some others. How about lupus or anti-phospholipid antibodies? My daughter has antiphospholipid syndrome. AEALLIANCE. ORG. Might have lots of information for you, Michel12. Yes those antibodies are on the panel and I believe we are going to do csf and blood. I have had alot of antiboides tested like lupus and anti cardio. I belive my anti cardio was a little high but the other tests that supplement it werent and the doctor said to not worry about it. Does it even really matter if they find something else? I know it will help insurance pay for all my treatment but are there any other actual autoimmune encpehlitis that cause ocd and dont have seizures? Link to comment Share on other sites More sharing options...
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