lbee Posted July 16, 2015 Report Share Posted July 16, 2015 My daughter's symptoms started in the fall with increasing severity through December/January. She started with intermittent blurry vision - the eye doctor nor ophthalmologist could find no cause. Then the hyperactivity, inattention, emotional liability soon followed. Spinning in circles, Tummy pain, joint pain, moodiness, dilated pupils... I noted all of these things before I even knew what PANDAS was. Since she was only 5, we excused a lot of it as behaviours. The leg pains were growing pains. etc. Then the tics started. And got worse. In Feb we had a positive ASO and started 10 days of Amoxicillan followed by Augmentin. What I can't forget and I remember it VIVIDLY is that almost exactly 1 hour to the minute, after taking her abx , her tics would flare wildly. To the point where I almost wanted to stop giving the abx since I thought she was having a bad reaction to them. Other moms and her ND told me to stay the course and this was herxing.... After about a week it started to calm down, and by 2 weeks it stopped. We added many diet changes, and right now she's a completely different child. But you can tell little something might still be there...I still notice very mild, tics and possibly some compulsions.... no one else would likely notice Fast forward 3 months... this past June.... we got a positive bartonella titer - 1:64. Docs are telling me that's not really a positive..... Also the 1st Lyme test was reactive but the Western blot was non -reactive. We are now running Igenex. So my question is - could she have actually had Lyme and we "got lucky" and were treating it thinking we were treating the strep? I've read that amox is a treatment for lyme.... Many people are telling me that you don't really herx like that from strep.... but you do from lyme? Link to comment Share on other sites More sharing options...
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