Salinamom Posted May 15, 2015 Report Share Posted May 15, 2015 Hi my daughter 14 just got diagnosed by dr k pandas. Local dr is willing to do Ivig but dr k will not give out his Ivig protocol due to liability issue. Anyone has it? Please email me tiinglau@gmail.com ASAP Link to comment Share on other sites More sharing options...
pr40 Posted May 15, 2015 Report Share Posted May 15, 2015 if this doesn't work, you can contact NIH, sue sweedo, and ask for advice, or lehman at yale. Salinamom 1 Link to comment Share on other sites More sharing options...
Salinamom Posted May 15, 2015 Author Report Share Posted May 15, 2015 Did you email me? Link to comment Share on other sites More sharing options...
pr40 Posted May 16, 2015 Report Share Posted May 16, 2015 i made a post. i did not e-mail you. Link to comment Share on other sites More sharing options...
nicklemama Posted May 19, 2015 Report Share Posted May 19, 2015 Have your doc call Dr Swedo at the NIH for her protocol. Link to comment Share on other sites More sharing options...
Mom23boys Posted May 20, 2015 Report Share Posted May 20, 2015 The Pandas Physician Network site lists the NIH protocol for IVIG https://www.pandasppn.org/ivig/ Link to comment Share on other sites More sharing options...
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