HopeinHIM Posted May 9, 2015 Report Share Posted May 9, 2015 Dd 6 is struggling. She is my little niece. I have received so much from this forum with my DS so I know the depth of knowledge that can be available. She began emotional liability in the summer and quickly moved into anxiety attacks. She has always been sensitive and very clingy and has tactile issues as well. She is rarely sick and never needed antibiotics. She is bright and in kindergarten and doing well when not having uncontrollable attacks at home. Symptoms: mostly all psychiatric manifestations. Paranoia/some hallucinations during anxiety food issues separation anxiety lots of cavities (over 20and counting) occasional weak legs screams she wants to die body morph issues (thinks she is fat and ugly)She weights 45lbs and very tiny little girl! Dr T diagnosed with PANS bc of her symptoms and family history with my DS . Cox socci was very high as well. With Diet changes (no gluten) and 2 months on Valtrex her attacks calmed slightly (less frequent and not as intense. But they are returning. She started to see(llmd)Dr G in Pa and he ran Igenx. IgM IgG 39 IND 31 IND 41 + 41 IND LLMD says he will keep eye on her but doesn't think its lyme's. Poor baby. She says she wants to Die bc her brain wont leave her alone!!!Dr recommends hormone Pregnenolone supplement bc hers was very low <5 IgG IgA and IGM standard labs were all on low side but Still NORMAL! Her mom is polarized!! Link to comment Share on other sites More sharing options...
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