Can you share your Bart/Pans treatment?

[HopeinHIM]

DS 10 has PANS/Bart we have tried a few anti B cocktails and azith/Bactrim/amox worked great at clearing his brain. However he grew allergic (anemic) to Sulpha drugs and had to stop the Bactrim cocktail.

WE have tried several combo's Rimifcan, Omnicef, and just now minocycline. PLUS we always do Half dose for awhile bc sensitive and yet he still has these reactions. The first two made his feet numb and the Minocycline, although was working great for two whole weeks, began to cause hive attack. We are also using Stephan Buhner herbs very little, very slow & very low.

Question: Any children do well with Doxy? He is over 8 yrs old. I think that's our last choice for the Bartonella treatment? He tolerates azith well. Just want to know what has been working with your kids with this rotten co-infection? Thank you all!

[sf_mom]

There are many things we have used beyond antibiotics to help treat Bartonella/PANS. It seems like your DS's body is having a hyper immune response to many things. Doxy might be worth a try. However, if it is not helpful I would try to focus on other alternatives that will help him detox, balance the immune response and slow the hyper immune response, etc.

 

Here is two things to consider.

 

• EARTHING OR GROUNDING: I've been posting a lot about this lately but truly the most inexpensive treatment protocol with the best response. A good friend is also having a similar wonderful response with her son. I recommend reading the first 50 pages and last 30 pages of book that comes with starter package. It deals with electron deficiencies.... hence the hyper immune or allergic responses. Here is a little exert from book:

 

The body is a highly intelligent electrobiochemical system that is strongly influenced by its internal electrical environment. Countless electrical charges within this system regulate countless biochemical reactions, including enzymatic transformations, protein formation, and PH balance. In this complex arrangement, the Earth's surface electric potential serves as the body's stabilizing reference point or ground. As I have learned through my research and that of my colleagues, contact with the surface of the Earth maintains the body's electrical stability and the normal functioning of its self-regulating and self-healing mechanisms.

 

By Gaetan Chevalier PH. D Scientist of Developmental and Cell Biology Department.

 

 

 

The book goes on to say the negative charge is a relative potential depending on location. However, it is still the most negative charge available in our environment.

 

It cans cause a herx so once again 'slow and steady' wins the race. Start with bands for at least three months prior to using any other grounding products.

 

http://www.earthing.com/product_p/sobbk.htm

 

The individual that gave me our earthing starter package wrote several pages for the book, has suffered extensively from Lyme et al (now considered in remission), is a well respected Lyme blogger and in the process of writing a Lyme book. I was essentially a non believer and now our entire family sleeps grounded nightly.

 

• HISTAMINES: Test histamine level and consider mast cell stabilizer with your Dr. We now use Cromolyn. There is also Ketotifin or other over counter supplements available for mast cell stabilization.

Edited January 14, 2015 by sf_mom

[HopeinHIM]

 

There are many things we have used beyond antibiotics to help treat Bartonella/PANS. It seems like your DS's body is having a hyper immune response to many things. Doxy might be worth a try. However, if it is not helpful I would try to focus on other alternatives that will help him detox, balance the immune response and slow the hyper immune response, etc.

 

Here is two things to consider.

 

• EARTHING OR GROUNDING: I've been posting a lot about this lately but truly the most inexpensive treatment protocol with the best response. A good friend is also having a similar wonderful response with her son. I recommend reading the first 50 pages and last 30 pages of book that comes with starter package. It deals with neutron deficiencies.... hence the hyper immune or allergic responses. Here is a little exert from book:

 

The body is a highly intelligent electrobiochemical system that is strongly influenced by its internal electrical environment. Countless electrical charges within this system regulate countless biochemical reactions, including enzymatic transformations, protein formation, and PH balance. In this complex arrangement, the Earth's surface electric potential serves as the body's stabilizing reference point or ground. As I have learned through my research and that of my colleagues, contact with the surface of the Earth maintains the body's electrical stability and the normal functioning of its self-regulating and self-healing mechanisms.

 

By Gaetan Chevalier PH. D Scientist of Developmental and Cell Biology Department.

 

 

 

The book goes on to say the negative charge is a relative potential depending on location. However, it is still the most negative charge available in our environment.

 

It cans cause a herx so once again 'slow and steady' wins the race. Start with bands for at least three months prior to using any other grounding products.

 

http://www.earthing.com/product_p/sobbk.htm

 

The individual that gave me our earthing starter package wrote several pages for the book, has suffered extensively from Lyme et al (now considered in remission), is a well respected Lyme blogger and in the process of writing a Lyme book. I was essentially a non believer and now our entire family sleeps grounded nightly.

 

• HISTAMINES: Test histamine level and consider mast cell stabilizer with your Dr. We now use Cromolyn. There is also Ketotifin or other over counter supplements available for mast cell stabilization.

 

Thank you, I will down load this and read. I will also look into purchasing some Ketotifin. My questions must sound like a ramble most of time (that's my mind now a days sadly) I think my questions are straight forward but not many responses. We are moving and I did actually just buy the sheets but did not put them on bed bc he has been bedwetting. But I have them. This new house is a bungalow with only 60 amp going into home. I don't know much about this so will really research it. Thank you so much!!!

[sf_mom]

I would use the sheets for yourself.

 

The sheet may cause too much of a herx for your son at this time. I would start with bands for him for at least 3 months first, then move to sheets. Bands are $19.99. It must be a grounded outlet that you plug into. Outlet checker comes with most products or you need to run rod directly into ground outside if there is not a proper outlet in home.

 

I would test histamines first before supplementing. We tested via Lab Corp both Plasma and Determination Blood. Our older son's plasma is normal but his Histamine Determination, Blood is elevated at 51. We used Cromolyn and IsoQuercitrin since he ART'd for these and helps with food allergies. Ketotifin is a mast cell stabilizer and is a prescription. Over the counter products that help with histamines Benadryl, Pepcid AC, IsoQuercitrin, DAO, D-Hist, etc.

 

Hope that helps. Good luck with your move.