How many weeks does it take for IVIG to work?

[Michel12]

From my recent posts you guys know I recieved IVIG. I have some benefit where my muscles are more relaxed and I feel a little calmer. But how long did it take for IVIG to work for you guys. My doctors have kind of skirted around saying 3 weeks or its different for everybody and I'd really like ot know what to look for so for parents of children who had IVIG what did they start to notice?

[bigmighty]

My son had IVIG over a period of two days. Six weeks later, he had IVIG again, also over a period of two days. Dose was 2g/kg. One week after the 2nd round of IVIG, he began to improve.

[pr40]

this is second hand info, I heard that IVIG works after six months. that makes sense since the reason ivig is given is to resent organism's immune system. in other words, it's a process.

monthly ivig is given in smaller doses -- there are basically two different regimes, it seems michel12 got hd.

[cynditk]

It totally depends on the person...my son is immune deficient so for him IVIG is a medication and not just a therapy for PANDAS. I agree that you are looking at a process of restoring the immune system and not a quick treatment.

[airial95]

_{For my son the effect was immediate. Within 24 hours of finishing his first infusion he was 100%. Effects lasted about 7 weeks, and he was receiving infusions every 8 weeks for almost a year.}

[nicklemama]

In my experience, it takes months. My son had IVIG twice, 19 months apart.

[rsbpandas]

my son, 8, had his first ivig done exactly 2 weeks ago and we are waiting, not so patiently to see some improvement! so far all we see is more hyperactivity, ODD, and anxiety...doctor said she doesnt think it will take too long to see improvement but so far nothing:(