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Posted

I am managing today and I think my mom is going to take me out to see a movie but on Thursday this week we are doing the IVIG so I will update everyone on how i'm feeling after that. I believe they said it would take a couple of weeks to see improvement. Thank you all for posting. I do see a therapist everyweek. But somehow still feel isolated being at home all the time and not knowing alot of other people who are going through this. Thats why I love this website so much. I have gotten some recomendations for some LLMD's before but I think because of cost effectiveness we were staying with our ped who was managing it but we will look into them again definitely.

Posted

ivig is a cure for some people but not for most. I'd suggest that you think of your health long term and try to reduce inflammation through diet and life-style and supplements.

hot baths or sauna, apparently, may also be helpful for some.

Posted

If you are having IVIG tomorrow, start consuming extra liquids now! You will need about 5 oz of water or juice every 90 minutes beginning now and straight through the weekend. Otherwise, you'll have an overwhelming headache for days.

Posted

Thinking of you today. Hope the IVIG is effective in reducing some of your symptoms.

 

Dd is still wanting to write you, but has had a very bad reaction to Prozac. Might be a bit before she feels well enough to write.

 

Please keep us updated on how you are doing.

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