HopeinHIM Posted November 12, 2014 Report Posted November 12, 2014 Hi, Doc mentioned that Low dose Naltrexon could work as well IVIG and he has good experience with Pandas/Pans/Lymes children in his practice. Low low doses only. In pill form. 1.5 to 3 mg. I know it has some side effects and the children can have some very lucid lively dreams for first few weeks. I am hoping to hear if anyone has tried this with their child. My 10 yr old DS has Babs/Bart/Pans. He is super sensitive to all herbs and meds and his herxes or side effects last for a few weeks. Most all his reactions are neuro as well . This effects opiate receptors in the brain initially but then somehow boosts' the immune system after. Please share if you can! Thank you.
frikfrak Posted November 12, 2014 Report Posted November 12, 2014 Hi, My DS (24) took it for approximately 2+ years and never noticed a thing. Just recently stopped a couple of months ago and didn't notice any change. frikfrak
Mayzoo Posted November 12, 2014 Report Posted November 12, 2014 Some use it for autism and CFS. You can try a search on these forums and you may find more information that crosses over from autism/cfs to PANDAS: http://www.autismweb.com/forum/viewforum.php?f=4&sid=1e1da048c64c676e50dc250d3aa8435d http://forums.phoenixrising.me/index.php?forums/antivirals-antibiotics-and-immune-modulators.4/
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