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Posted

Can anyone share experiences with this and share dosage information? Also considering vayarin. Would love any info on how it helped.

Ds9 4weeks post ivig

2months post t&a

8months on 8ml aug 2xdaily

Thank you

Posted

I just want to join in your question about vayarin. It's very expensive and we are not seeing any effect. what effects did you see?

Posted

we just started it three days ago. gave it to both kids. one in the morning. i know it says two, but didn't want to start with two.

Posted

Vayarin has been working well for my son, as I've posted before. The results are not insanely dramatic and it definitely takes a few weeks to kick in. So not at all surprised you aren't seeing any results with a half a dose for only three days. Give it a full dose for at least a month, but really two.

 

After a few weeks of taking it I noticed that he could focus better and just sit down and do his homework, for example. Or that he wasn't fighting with us as much. And that he could handle adversity better. Etc.

 

For us it is well worth the $28 copay a month, but I think it is double that without insurance.

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