beeskneesmommy Posted February 14, 2014 Report Share Posted February 14, 2014 Just had a talk w/one of my son's specialists. DS7 is loaded w/allergies. He was high pos. on many grasses, trees and molds. Doc wants to do a series of allergy shots, starting with a very low allergen content that he will make up and mail to me. He seemed sure that DS will not have any reaction and that it will help to quell the PANS symptoms that come like clockwork during allergy season here in the south. It makes perfect sense to attempt to keep the antibodies from getting agitated with pollen/molds and risking a setback. However, I get really freaked out over introducing anything like this because I fear it will bring back PANS symptoms that we have worked so hard to eradicate. Doc assures me this will not happen. Has anyone else done this? If so, please let me know how your kiddo did, if the shots caused PANS symptomology initially or throughout, if you think it helped, etc. Thx! Link to comment Share on other sites More sharing options...
ibcdbwc Posted February 14, 2014 Report Share Posted February 14, 2014 Following this thread as I'd love to hear the answers to this question! Link to comment Share on other sites More sharing options...
putting together the piece Posted February 14, 2014 Report Share Posted February 14, 2014 Maybe I can help. Ds9 has classic pandas and lyme. For 2 years he suffered with horrible intrusive thoughts that just never let up. During this time I began to realize that he was very sensitive to mold. We took him to a child allergist and started him on low dose allergen shots. It was the best decision for him. Within 2 days those awful intrusive thoughts stopped. We continue to get the shot every 2 -3 months. It has been really helpful for him. That being said it is only part of what we are doing for him but it is a meaningful part of his protocol. Link to comment Share on other sites More sharing options...
beeskneesmommy Posted February 14, 2014 Author Report Share Posted February 14, 2014 Yes, we have been at this for 5 years. I just discovered how incredibly allergic to allergens DS is, although I was aware before but the tests came back in conclusive and contradictory a couple of years ago. A few people on the other forums also had positive things to say about the allergy shots. Dr. B is awesome and stated that he would start with a very low dose. We are trying to circumvent the fallout that usually c omes with allergy season. DS is doing very well and we don't want to re-agitate those antibodies!! Link to comment Share on other sites More sharing options...
putting together the piece Posted February 15, 2014 Report Share Posted February 15, 2014 Just to be clear we use LDA or low dose allergen shots. They do not keep increasing in dosage like some of the more typical allergy shots. If you google it you can compare to traditional shots. Best of luck to you and your ds. Link to comment Share on other sites More sharing options...
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