Saw Dr. B on Friday & hopeful...

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We were ultimately referred to Dr. B from Dr. Murphy in Florida after working with her for 2 years. Our son's labs were maddeningly normal - all the way around - yet he was getting strep every 6-8 weeks (dropped to every 10-12 weeks post T&A) so just as we were seeing improvement from flares - BAM! Positive again. The local immuno was willing to order IVIG on Dr. Murphy's word, but we all felt it would be like throwing deck chairs off the Titanic if we couldn't figure out where the strep kept coming from. (We went to ID that Murphy recommended and she was about as useful as an inflatable dartboard). Turns out my husbands strep titers were through the roof too - and while the whole family got swabbed every time my son got strep, the grown ups always came back negative.

 

He tested for Lyme first with the Western Blot (which to our surprise came back +), but then ran Igenix and co-infection testing and it came back negative across the board - not even a single band showed up + or IND. We ended up running Igenix a second time on my son just to be sure, with identical results. So Dr. B really does dig into Lyme well, and works closely with an LLMD for the tougher cases.

 

We ultimately started IVIG with him, and it has made a HUGE difference in our son. We're now doing it regularly with our local immuno (when Dr. B went through the updates to his infusion center last summer, we switched because our infusion was pushed back and we didn't want to wait.) But he really made a HUGE difference for our son.