ktdommer Posted February 5, 2014 Report Share Posted February 5, 2014 (edited) My 18 year old son's results are just in. I have an appointment at 4 to go over results with Lyme ILADS doctor. I believe this clearly shows PANS. What do you think? 2 of the tests are incomplete due to temporary manufacturing supply problems. Hope those 2 tests are coming yet. Dopamine D1 at 8,000 norm range 500-2,000 shows high yellow TUB at 4,000, norm 250-1,000 CaM Kinase II 1t 157 range 53-130 Dopamine D2 incomplete Lysoganglioside incomplete Thanks for any insight you may have! Edited February 5, 2014 by ktdommer Link to comment Share on other sites More sharing options...
nicklemama Posted February 5, 2014 Report Share Posted February 5, 2014 You don't need the rest of the results. This shows likely PANDAS. I don't know what exact terms would be used as in, highly likely or likely, but these are PANDAS results. My guess, based on how much over the range D1 and tubulin are, its highly likely. My son was in the study group. He had high tubulin and high D2 and his CamK II was 147. He was in the lower PANDAS range. They've changed the ranges of normal with the new lab (probably due to different calibration and maybe the control samples). Link to comment Share on other sites More sharing options...
Rachel Posted February 7, 2014 Report Share Posted February 7, 2014 The test should show in the likely range. My son's CaMK was 197. Link to comment Share on other sites More sharing options...
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