trintiybella Posted January 12, 2014 Report Share Posted January 12, 2014 EEG, Spect and blood work all came back fine @ NYU. She has been on bactrim and mino, and other combinations for lyme & baronella for years and every time she is on them, she gets worse and just spends 24/7 picking moles off her body and staring in the mirror because she feels she is so ugly, not to mention she is much more agitated and hard to live with. I have seen sleep (SEVERE INSOMNIA) from giving walnut oil and I have seen her poop (she has SEVERE constipation) from giving vancomycen. This tells me her gut is a mess and I need some real work in this area. We had to take a break from antibiotics for the moment, and reintroduce them once we get her pooping and sleeping, which I believe we will get once we work on her gut. Now I have to figure out what to go after. Do I go after the parasites first or the clostridia? I have a phone consult with S.S. to help me figure this out, but if you have any tips, I am all ears! Thanks Link to comment Share on other sites More sharing options...
sf_mom Posted January 12, 2014 Report Share Posted January 12, 2014 (edited) You might check hormone levels and thyroid if you haven't yet. From ILADS conference 2013. Hypothyroid symptoms can be intolerance to cold, weight gain, dry skin, not being able to sweat, constipation, immune suppression, and low body temperature. - See more at: http://www.betterhealthguy.com/ilads-2013#sthash.qiryiwXt.dpuf Edited January 12, 2014 by sf_mom Link to comment Share on other sites More sharing options...
Guest Posted January 12, 2014 Report Share Posted January 12, 2014 Minocycline is giving me bad insomnia, antibiotics have so many side effects. Some of them have given me diarrhea as well. The main thing that helped with constipation was probiotics. Link to comment Share on other sites More sharing options...
T_Anna Posted January 14, 2014 Report Share Posted January 14, 2014 People on Facebook have been very positive about treating parasites. We had a break through after giving Ivermectin, but the next time nothing, so it might have been the HD IVIG. T.anna Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now