ibcdbwc Posted December 16, 2013 Report Share Posted December 16, 2013 I know this may sound strange but it nags in my mind so I thought I'd ask here. DS12 PANDAS, retrospect onset at age 5 but misdiagnosed… Prior to PANDAS, DS had fully developed fine motor skills including the ability to draw and manipulate intricate projects. But, by age 9 his peculiar handwriting grip and loss of fine motor skills had become very noticeable. This is no longer flare dependent. It's ongoing though he has learned to manage and adapt. His pencil grip is very strange despite repeated attempts by OT to correct. He still has trouble holding a fork properly. I notice his hands when at rest. They rest palm side up, while at his sides, crossed, on a table. on his lap. Always palm up and fingers are only curled ever so slightly, I don't know what my question really is. LOL. I guess, does anyone notice this? Link to comment Share on other sites More sharing options...
smartyjones Posted December 16, 2013 Report Share Posted December 16, 2013 how do you feel his state of health is? I may wonder if this is some type of contamination issue. the reason is say this is. . . I have just recently seen an old picture of ds that I love. he is sitting in an outside chair on a beautiful day and he has a smile on his face. when I recently saw this, I noticed his fingers are closed, not clenched, and he seems to be holding what I now would think may be a contamination-safe pose of his hands. his palms are down. this was long before what we know as his only contamination phase issue that was very brief and likely a herx-like reaction induced by an anti-viral. other than that, he did not have contamination issues -- that we knew about. Link to comment Share on other sites More sharing options...
ibcdbwc Posted December 16, 2013 Author Report Share Posted December 16, 2013 Interesting. I would not have thought that but it seems certainly possible. He major symptoms during flare (when he was younger) had been "just right OCD" - very sensitive with touch in particular needing everything to be even. More recently, this fall, the OCD was worries with order, dust, and dramatic reassurance/checking. However this "pose," I've noticed regardless of health, I think??? Seems to be all the time but I guess I need to add it to my chart!! I do wonder if there are more secretive OCD issues that I don't know about. Link to comment Share on other sites More sharing options...
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