trintiybella Posted December 12, 2013 Report Share Posted December 12, 2013 (edited) The intrusive/racing thoughts are the worst! Psych. drugs make her worse, but what else can I try??? Any suggestions? This is what I am giving: MEDICATION 11pm 35mg Milk Thistle 50mg Minocycline 800mg Bactrim 100mg Ampho D3 5PM 50mg Minocycline 800mg Bactrim 100mg Amph 10PM 4 Sm. Scoops D-Lactate 3mg. Melatonin 50mg Mag. Citrate 100 Ampho 6mg. Seroquel Edited December 12, 2013 by trintiybella Link to comment Share on other sites More sharing options...
JoyBop Posted December 12, 2013 Report Share Posted December 12, 2013 I'm not sure I understand all the names and numbers and things you have listed there. But what kinds if thoughts exactly? When they are in an active flare there's nothing in the works that can stop them. Just being close by and comforting them, letting them know they are not alone, not crazy, and he is safe. Different things comfort different children. My kiddo likes light back rubs. Sometimes I can read him books to take his mind off things. Sometimes music with noise canceling headphones with classical or relaxing music. We let our son set up a man cave where he can go when he needs to decompress. Its a fort under a bench at the foot of my bed and there is an mp3 player and crayons and paper under there. Yet other times he needs us to be close. No medications have ever helped. CBT can help when they are well and up for a challenge. As I was writing this I had to stop bc DS had a panic attack over finding a gun wrapper. Nothing I could say or do would stop the intense tears and screams. We don't react with panic, just support and love. If we panic and tet upset the message we send is, wow, there really is something to be afraid off. Don't try to be a fixer, bc the OCD brain will not let you in. Just so what you can to comfort and listen. Change the subject to can. If he falls for it you can give him a job. I just had my son vacuum the good fish crackers he smashed when he was freaking out. That was enough to redirect him. I hope some of that helped or made sense. Link to comment Share on other sites More sharing options...
PowPow Posted December 12, 2013 Report Share Posted December 12, 2013 My daughter would listen to music , watch movies at the same time. Risperdal would help a bit. What does Dr N say? if she is supposed to have testing by him next week, I wouldn't change anything, medication wise. Link to comment Share on other sites More sharing options...
trintiybella Posted December 12, 2013 Author Report Share Posted December 12, 2013 Thanks for all the suggestions and sorry about the way my meds. were listed. I fixed it. What I have is a child that stares at the computer and stays in bed all day because she can not walk from the bed to bathroom to even relieve herself, because she said there are just too many steps to follow to get there. She tries to walk there and then a thought pops in her head, then another, then another, then another...so she gives up and goes back into bed. I think this is a big reason why she has such severe constipation. She holds it all day and then stool gets hard as a rock inside her, and the cycle begins. She NEVER takes head phones off or sits to eat dinner because she gets too impulsive from the intrusive thoughts. You can barely talk to her. If I ask her a question, it has to be fast and then she has her head phones back on. The intrusive thoughts are worse on antibiotics, but the severe insomnia is better. So I am thinking, hummm.....what's worse, up for days around the clock or watching her suffer so severely with the racing thoughts. She is begging for me to stop what I am giving her, because she would rather be up all night and never sleep, instead of these thoughts being so bad. Don't get me wrong, they are still bad even without antibiotics, but worse on the antibiotics. Link to comment Share on other sites More sharing options...
PowPow Posted December 12, 2013 Report Share Posted December 12, 2013 Maybe she is right. She is the one living in her brain. Maybe give it a break. you have given it a good try, maybe give her a few days off. if its not obviously helping give her a break. Is She going for testing next week? Link to comment Share on other sites More sharing options...
PowPow Posted December 12, 2013 Report Share Posted December 12, 2013 stopping her antibiotics for few days is not going to create irreversible damage or kill her. Poor kid. Link to comment Share on other sites More sharing options...
trintiybella Posted December 12, 2013 Author Report Share Posted December 12, 2013 I know. Poor kid is right! I am a wreck wondering if this is the right treatment for her, but nothing ever works for her. It' just awful. So if I give her a break....what I will have is a kid that is stuck in front of computer watching the same show over and over, and she wants me there with her. She won't let me go. She gets real silly, when the thoughts pile up for her, but she is not mean. She will also be up around the clock for days. Scares me that she never sleeps, but perhaps Dr. N. @ NYU can see how she REALLY STAYS up for 3 days at a time, and more if I don't start adding meds. into her. Good God, this is so horrible. Thanks, I think I am going to give her a break. Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now