Question on focus issues

[JoyBop]

Well Smarty, you have certainly earned your name in my book! Thank you for the excellent and specific advice!

 

Yes, we are still working on stabilizing him, although it took us a long time to figure that out. We as parents tend to discuss our kids behaviors as relevant to the worst, causing us to underestimate how dysfunctional the child really is. I am finally realizing that even at his best, the child I knew is not there. (On vacation, but WILL come back!)

 

The 504 we had was just protecting him from more damage and to support him during flares, but it seems that his executive functioning is out to lunch and his self control has gone with it.

 

I do have copious notes from doctors as "suspecting PANDAS" or nuero-immune disorder, or one doc put it. I have a great psychiatrist on board that is always willing to make phone calls and write compelling letters for us, and our family doc (although she has no clue on how to treat us beyond abx) wrote an extremely strong two page letter when the school refused to meet with me earlier on.

 

SO I suppose what Im hearing is that we are not alone, and that many kids in the more chronic state of this disease are lacking in abilities in school even when "well" (which tends to be a relative term.)It just took me a whole year to learn we weren't getting out of the woods that quickly!