JoyBop Posted September 13, 2013 Author Report Share Posted September 13, 2013 (edited) Well I suppose that if the majority of people got the flu vaccine, the idea would be that it wouldn't be as rampant, so long as it was an effective vaccine to begin with. Its like MMR. At one time measles were completely irradiated bc everyone got vaccinated and now we are seeing deadly cases of it again. Of course, its a free country and we all get to choose what's best for our own children and I'm not implying we should all vaccinate. All I'm saying us I do understand where the medias message is coming from, not that I agree with it. Edited September 13, 2013 by JoyBop Link to comment Share on other sites More sharing options...
laure Posted September 13, 2013 Report Share Posted September 13, 2013 The same argument is made with regard to policies for antibiotic use - that as a society we are using too liberally and the effectiveness is decreased in a dangerous way. On the other hand, when it is YOUR child who is suffering and really needs long-term antibiotics to get well, you feel differently. What may be good for the population as a whole may be deadly for a loved one - but it is a matter of numbers from the medical establishment's point of view. I have had heated argurments even with family members over this. Personally I will never regret doing anything we did, no matter how borderline, since those actions saved our child. SSS 1 Link to comment Share on other sites More sharing options...
PowPow Posted September 13, 2013 Report Share Posted September 13, 2013 I am required to get one for my work & my PANS daughter (now on celllcept) will need one (per her rheumatologist, due to immune supression by cellcept). Link to comment Share on other sites More sharing options...
peglem Posted September 13, 2013 Report Share Posted September 13, 2013 I'm not really understanding the vaxing of those w/ weak/deficient/suppressed immune system. Doesn't the vax need the immune response (antibody production) to be protective? The vax by itself isn't protection? Link to comment Share on other sites More sharing options...
cobygurl Posted September 14, 2013 Report Share Posted September 14, 2013 Our doctor told us that in children who have neuro-immune issues, vaccine benefits DO NOT outweigh the risks, so we aren't doing any shots. We were told, like many other parents on this thread, that we could protect him using supplements etc... Link to comment Share on other sites More sharing options...
PowPow Posted September 14, 2013 Report Share Posted September 14, 2013 (edited) I'm not really understanding the vaxing of those w/ weak/deficient/suppressed immune system. Doesn't the vax need the immune response (antibody production) to be protective? The vax by itself isn't protection? I suppose that a suppressed immune systme must make SOME antibodies or we would have an AIDS-type situation or a boy in the bubble, right? I imagine the efficiency of the vaccine would be weakened, from a "suppressed" immune response. hard to say. hard to know what to do. She is in school now, exposed to illnesses. If she was still room bound by PANS, than I would not have to worry about it!! of course, I will take the worry over a flu shot vs incapacitating OCD any day! Edited September 14, 2013 by PowPow Link to comment Share on other sites More sharing options...
JoyBop Posted September 14, 2013 Author Report Share Posted September 14, 2013 I just got on our patient portal at the hospital where we see all of the great PANDAS specialists. Under recommendations it says "due for flu vaccine". I can't tell if Dr G put it there as a recommendation for us or if this automatically appears in everyone's record as part if a public health initiative. In any case, we have flow up next month and I will ask Dr G myself. I wouldn't get the vaccinations otherwise. In the meantime the rest of my family will get vaccinated. DH and I work in the healthcare industry and although we aren't required by law, it is highly recommended and we do get the shots due to the high risk of our work place. Link to comment Share on other sites More sharing options...
T_Anna Posted September 15, 2013 Report Share Posted September 15, 2013 PowPow, so great that she is in school!! T.Anna Hoping for that for DS15 Link to comment Share on other sites More sharing options...
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