IgE and food sensitivities....help with question please

[Jaal]

My DS7 has started to get some test results back (Dr. Mielke), and I wanted to get some opinions before I have my follow up consultation.

 

My DS was diagnosed with PANDAS by Dr. k and we had one HD IVIG in May with very poor results...we are now looking for other illnesses.

 

His IgE score was 354 (high).

 

He also tested class 3 for some foods:

Wheat .681

Yeast (bakers) .455

Egg Yolk .906

Gluten .511

 

I have read that the High IgE can cause the high sensitivities to food (and that everyone tests high to certain foods they ate on the day of testing).

 

I'm not sure what to believe so would love to hear from parents who have experience with this issue.

 

Is it possible to treat the high IgE by some means other than eliminating certain foods.

 

Basically, the thought of trying to eliminate yeast, gluten, and eggs from my son's diet (basically every food known to mankind) makes me want to cry... I honestly think dealing with the Pandas Symptoms might be easier than attempting this diet

 

I have also heard from many parents who tried the elimination diet and said it didn't help.

 

 

Any thoughts would be greatly appreciated.

 

Thank you!

 

 

 

 

 

[nicklemama]

My sons IgE was within the normal range. He tested in the 900's for Brewers and Bakers yeast. I put him on a yeast free diet for 14 months and I saw no benefits. In fact, he caught pneumonia and had a second IVIG during this time. Late this spring I stopped following the diet. He's doing really well right now, I believe due to the fact that a new doctor tested him for Lyme and coinfections and he's being treated for ehrlichia and anaplasma for the past 4 months. He's had IVIG twice with Dr K.

[SSS]

I bet Dr. M is going to strongly advise going gluten free.

The good news is that there are a LOT of gluten free foods now available (breads- bagels, muffins, pizza crusts, frozen pizza's, etc.)

in just about every grocery store.

I did 100% gluten, dairy and soy free with my dd for 2 years- she was younger, before PANS- it did make a big difference and helped heal her gut- and, she actually started eating better- willing to try meats, proteins.

 

Anyway, she eats it all back again now, but ironically when she got to go back to gluten, I found I had to go off.

I did, 100% (has to be ALL the way) for months, tried to add it back in, and had more trouble-

so back to GF for months again now- and maybe forever- don't know.

 

All this to tell you it may be easier than you think, with the foods that are now available. It can make a big difference in inflammation, if there is a gluten intolerance, which is becoming more and more common.

[NancyD]

When my DD was little she had severe colitis and was allergic to gluten, dairy, soy, yeast, and a variety of other foods. With an elimination diet she ate mostly rice-based foods, in addition to fruit, veggies, and meat/poultry. Elimination diet and digestive enzymes certainly helped for a few years but it was merely a bandaid. Any cross-contamination of gluten set her back. And within a few years she was also allergic to rice. Aargh!

 

What ultimately healed DD's gut and eliminated all food allergies altogether (except for artificial dyes and certain food additives) was monthly glutathione IVs for 2 years. For us it was the answer!

[pr40]

just about diet. it's actually very easy to go free of yeast, gluten, and eggs. you just have to do two things. First, go beyond European cuisine and, second, be willing to do some cooking yourself. that's asian, south american, african.

don't be afraid to rely on meet. there is nothing wrong with it -- the organic or free range -- and kids tend to love it.

i encourage you to do it. the only thing that is really difficult is changing your mind set, what you are used to.

but Pandas will force you to do that anyway.