New midwestern Immunologist

[cobbiemommy]

We met our new Midwestern immunologist, today. He is knowledgeable and was very supportive and totally understands PANDAs. He wants to build a team, with an ENT, a neurologist and whomever else we need to solve the puzzle. We are still keeping our LLMD in the loop on all of this.

 

While I am grateful for this approach; I am exhausted to start again. Tomorrow, we start making appointments and have some new blood testing done. (Can you believe that there are blood tests that our kids have not had?!?!)

 

Two "aha" moments of the day. First, the doctor's office is literally across the street from a quack that we went to at the start of this mess. Second, my supervisor (and good friend) called to tell me that my coworker's husband has lung cancer. I jobshare with her and feel terrible for her. Our part-time jobs are ending because of restructuring (I hope to be hired for full time) so she will probably take FMLA and not come back to work. Cancer puts PANDAs in perspective.

 

If anyone wants the name of this immunologist, please PM me.

 

"Tomorrow is another day."

[JoyBop]

I'm so sorry to hear a our tour co workers husband. How awful!! And yes, that does put things into proper perspective. I can remember DS being hospitalized for 10 days with all kinds of tubes in his body not knowing if or when his intestines would ever work again and feeling so sorry for myself. Then I met my neighbors in the room next door who had a son in his 30s who lives there bc he has always been so sick. The parent were in their 60s and had a child who would never be well or walk or talk and I knew right then how much easier I had it. Sometimes a little perspective goes a long way. Our kids WILL get better!! All of them!!

 

I also Know how exhausting it is to start over. You will be energized when you see that this team knows what they are doing and actually help your child. Good luck!!!