How much does Motrin help?

[JoyBop]

Just curious, how helpful have you found Motrin? My 7 year old DS has been on intunive and Motrin since about mid June. The intunive helped with the rage and toned things down a notch. The. We added the Motrin a week or so later and our sweet, calm child returned. He is still on Keflex but his ASO titres are still through the roof. Lately his OCD has really kicked into high gear and has really interfered with family life. He's a constant checker and worrier and worries about things kids shouldn't even be aware of let alone worry about. So our psychiatrist (very pandas saavy) recommended we try Zoloft to help with the remaining OCD since everything else is so great right now. But we need to take him off Motrin as both those meds together can cause Stomach problems. She wisely advised to take hkim off Motrin for a week first instead of changing two things at a time so we can see the results. He had now been off Motrin for 3 days and I am shocked at the regression. He is back to hyper active behavior, having rages, hitting us and making these awful grimacing faces. Prior to taking him off Motrin he was so calm and sweet and well, normal. Now the PANDAS is spiraling out of control. Can Motrin twice a day make that much of difference? We are now considering changing his antibiotic to Zithromax and keeping him on Motrin and ditching the Zoloft idea. Just when I thought we were getting to the bottom, the bottom falls out.

Edited July 8, 2013 by JoyBop

[trintiybella]

My girl was on 200mg Motrin 2x's a day. She was very agressive in it and only helped a little with getting her to sleep. I lowered it and she's doing much better. Could it be withdrawals with your son?

[JoyBop]

That's an interesting thought about withdrawal but its really a dramatic return of old behaviors and not new ones. I can't get over how dramatic and fast things turned around. I was told discontinuing shouldn't be a problem but I will research that. Thanks for your input. Was your DS more aggressive on it? Interesting that it helped her get to sleep.

[marajo]

Maybe ask your doctor about using Curcumin (natural anti inflammatory). Not sure if it works or not but was suggested to us by our LLMD when we had to take our DS12 off Motrin. We ended up putting him on Biaxin and it seems to be working almost as well but bought the Curcumin to have in the house just in case. When we were waiting for our initial blood results the dr. said to put our DS on Motrin around the clock, and it was like we got our child back. So in our case, the Mortin was a huge help. By the way, we took our DS off the Intuniv (he was only on 1mg) when put on Biaxin .

[JoyBop]

Thanks for that! I will look up biaxin as well. So far no Lyme here. He is allergic to penicillin and all derivatives but has done well on Keflex which I understand has "some cross reactivity". I will look into the natural anti inflammatory supplement. Dies anyone else have experience with it? Did it work?

Marajo, do you mind if I ask why you discontinued the Motrin. Was it be a use he was doing better or was it problematic?

Thanks so much !

[marajo]

Dr T wanted us to stop Motrin when we started on the antibiotic so we knew the Biaxin was working. Motrin wasn't problematic for DS at all. When we saw the LLMD here, she suggested the Curcumin but as I said, we haven't used it yet.

Good luck!

[trintiybella]

Motrin made my girl more aggressive (like everything does) but it did help get her to sleep. I don't want to alway give it becasue I want to b able to see what abx. are working, like someone mentioned.

[T_Anna]

Last night DS started crying out if the blue. We hasn't seen this in months. We have been tittering down the Augmentin which has anti inflammatory proponents. DH gave him 2 advils and within 15 minutes DS was cheerier and within an hour he ate dinner and did some word scrabble.

 

It was truly amazing. DS is still suffering, but all the sadness/crying melted away.

 

Yesterday I was listening to some old Radio Pandas shows (Summer Flares). The doctor on the show (cannot remember her name, maybe Bahkta) suggested Aleve overAdvil. The neparesene (sp?) is easier on the body long term and each dose is 12 hours. Anyone ever hear this?

 

T.Anna

DS15

[Mayzoo]

Last night DS started crying out if the blue. We hasn't seen this in months. We have been tittering down the Augmentin which has anti inflammatory proponents. DH gave him 2 advils and within 15 minutes DS was cheerier and within an hour he ate dinner and did some word scrabble.

 

It was truly amazing. DS is still suffering, but all the sadness/crying melted away.

 

Yesterday I was listening to some old Radio Pandas shows (Summer Flares). The doctor on the show (cannot remember her name, maybe Bahkta) suggested Aleve overAdvil. The neparesene (sp?) is easier on the body long term and each dose is 12 hours. Anyone ever hear this?

 

T.Anna

DS15

 

 

It is naproxen sodium 220mg (Aleve) if you are referring to the OTC product. It does work for up to 12 hours, but starts wearing off in most around 8-10 hours. I still usually dose it every 12 hours for either myself or my kiddo. I gave it to her after her tonsillectomy as her night pain med because it lasted longer than IBU. I only occasionally use it place of IBU during the day mainly because IBU is cheaper and easier for me to get in my small (tiny) town. I need to drive almost 25 min to a place that has any decent price for the naproxen sodium.

 

Joybop, kiddo was on Zoloft and IBU at the same time for months and it never caused a stomach issue for her, but I made sure she had food in her tummy before dosing the IBU at all times. Kiddo took low dose Zoloft for anxiety. It helped a little at first, but I found lemon balm helps her more. My kiddo has only mild OCD for the most part and I do not think it helped that in her case.

[JoyBop]

Thanks for your input. T .anna the Aleve is a great suggestion. I could give that a try. It is amazing how fast the Motrin worked for your DS. I think it does the same for us but I always questioned it so thanks for the validation.

 

 

Mayzoo, I'm curious about the lemon balm. I would rather try a supplement first. I read somewhere it works more like Prozac which scared me due to the awful experience we had with DS becoming agitated and suicudal. Right now our issue is just his resistance to go to any inside public place for fear of gum and someone vomiting. It's hard to say wether this is more Ocd or anxiety but I suppose its both. He is also a "checker" and has "bad thought". And as a side note we switching him from Keflex to Zith and now is compulsive behavior of making gas and burping sounds is back. He does arm pit noises and belches and talked obsessively about bodily functions. How odd is that? I swear this was gone before we switched but bloodwork showed no improvement of ASO titers after 8 weeks of Keflex and Ceftin.

[Mayzoo]

Kiddos doc wanted to start her on Prozac as they felt it was the first line of treatment. I opted go with Zoloft instead since it is a second generation SSRI and I had not heard near as many negative reports of suicidal behaviour from it.

 

We started Lemon Balm when kiddos separation anxiety was at a peak. She is taking 500mg twice a day, morning and night. I did find some brands work better for my kiddo than others. We are using Nature's Way, Melissa Lemon Balm. You may find another brand works better for you. At her worst, I could not spin around without bumping into her if she was awake. She literally would not be more than 2-3 feet away from me. Within a few days, I was able to go outside to take care of my chores, and kiddo was content to stay inside without me. She soon after was willing to go outside on her own. I gave the night dose hoping it would curb her terrible nightmares, and it has.

 

I am not sure if it will help in your situation or not. Unlike the SSRIs, you will find out how he reacts within a few days to a week. It also will not stay in his system as long as SSRIs if he does not do well on it. I would not expect as severe a reaction as he had to Prozac, but with our kids, I can understand your concern.

[JoyBop]

Thanks. Kim curious but a little apprehensive to try. I knew after 2 days that proactive was bad for him. My doctors begged me to give it 5 full weeks. I should have listened to my gut. I'm also nervous to try Zoloft but I'm so tired of being grounded by OCD. I do have 3 other kids that would like to go out and enjoy being out of the house. This is do hard! I keep waiting for Zith to do something miraculous but I think its taken us back several steps.