Kathy4Him Posted June 17, 2013 Report Share Posted June 17, 2013 My son's behavior has gotten worse over last few weeks. Seems more depressed, doesn't speak so doesn't complain, eyes have that far away look. I noticed today his pupils are dialated. Any theories on this? Meds include: 500 mg Zith 25 mg luvox once daily 5 mg buspar twice day 500,000 units nystatin twice a day Lemon Balm twice a day 300 mg Omega 3 Magnesium Optimag 2/day Thanks, Kathy Link to comment Share on other sites More sharing options...
T_Anna Posted June 18, 2013 Report Share Posted June 18, 2013 We are doing much better without the Luvox, but 25mg is very low. DS's pupils became more dilated when he became reinfected in December/January, the dilation went away after the 1st IVIG. T.Anna DS 15 Link to comment Share on other sites More sharing options...
lfran Posted June 18, 2013 Report Share Posted June 18, 2013 Many of us have noticed dilated pupils as a PANDAS symptom. Link to comment Share on other sites More sharing options...
Mayzoo Posted June 18, 2013 Report Share Posted June 18, 2013 Dilated for us usually means active flare in progress, and of course behaviour is in the tank when dilated too. She has an active flare any time she is exposed to almost anything. What are his triggers? Does he run a fever when ill? Check for a red throat. Check for a fever. Is he normally non-verbal, or just recently? My kiddos speech is definitely affected by her flares. Has he had a growth spurt lately that may put him in a new dosage category for his meds? Link to comment Share on other sites More sharing options...
norcalmom Posted June 18, 2013 Report Share Posted June 18, 2013 Sometimes, I've dropped a few pills when things are worse and switched something for a couple days to Advil - just like treating a high fever for 48 -72 hours (my son is older so I start him with 2 and follow every 6 hours or so with one (but i don't wake him in the night for it, unless he has insomnia). (Dr T and a number of other folks on the forum do this. I agree the dilated pupils seem to indicate things are not good. Flight or fight syndrome - and to me - that they have some adrenaline or other hormone, opening up their BBB, flooding their brains with all the "bad" antibodies our kids make too much of. (my theory, not researched!) I think quick reduction in inflammation can help a lot. Good luck. Link to comment Share on other sites More sharing options...
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