Awareness walk in Pittsburgh, PA

[LindaMW]

If anyone is in the Pittsburgh area or cities close by, they are having an awareness walk on June 9th.

 

Here is the facebook link with information.

 

https://www.facebook.com/PRNPAChapter

 

 

[Mirantha]

I wish I could go, but will be gone that weekend

 

Pittsburgh DEFINITELY needs help with awareness; we have finally found a doctor who "hears" us & is willing to think outside of the box, but it was very, VERY difficult. Many horribly frustrating & disheartening experiences with many doctors & Pediatric Neurologists in the Pittsburgh area. One or two of them were downright insulting to myself and my 8 yr old DD. The "kinder" ones were politely dismissive.

 

I have been meaning to gather my thoughts & post my DD's story/symptoms on this forum, we are still desperately in need of help/input. In the meantime, I have been reading & reading through all of this, have learned SO MUCH, most importantly, that we are not alone...