Severe hyperactivity after IVIG

[Pandasphilly]

My ds11 just received IVIG last week and is suffering from severe hyperactivity. Excessive talking, constant noise, loudness, dancing, spinning, emotional, bouncing off walls especially late at night.

 

Is Hyperactivity after IVIG common? Does anyone know of a reason for it? Does IVig exacerbate Yeast? after googling it I read a "statement" from an autism mom that it does. Has anyone heard this? She goes on to state that IVig detoxes the body of heavy metals and that IVIG will not work as well if you are not Gluten Free. Hmmm... things I never knew.

 

 

[norcalmom]

Did your child have an steroids after?

 

My DS had periods of seeming almost manic after IVIG. It was weird. I was so so happy he was happier, and smiling and wanting to do stuff, but he was a little TOO happy for it to be normal.

[Pandasphilly]

Did your child have an steroids after?

 

My DS had periods of seeming almost manic after IVIG. It was weird. I was so so happy he was happier, and smiling and wanting to do stuff, but he was a little TOO happy for it to be normal.

thanks for your reply!

No steroids throughout treatment. In fact the only pretreatment was hydration, Tylenol, Benedryl plus the ivig. Also this is not the happy hyper

[nicklemama]

DS has always been worse after IVIG before things get better. We've done it twice.

[airial95]

We have had a bit more hyperactivity over the last 2 weeks (3 weeks post IVIG), but we also tried to take him off his ADHD meds, possibly prematurely.

 

 

As for IVIG not working if you're not gluten free- have to disagree with that one. We are not gluten free for a variety of reasons - primarily that my son has MAJOR food anxieties and often will only eat one food for weeks at a time, therefore he is severely underweight. We don't want to restrict his diet until we have a better handle on his eating and he gains some weight - I won't take away the few food he will eat regularly. So - we are not GF - but he has done MARVELOUSLY after his first IVIG. Almost 100%, only some minor rituals left at medicine time. Even brushed his own teeth this morning - a small miracle around here.