Guest Posted April 30, 2013 Report Share Posted April 30, 2013 Seems like my pans doctor is super busy and I'm having trouble getting things moving. I have to constantly make phone calls and only speak with secretary. Just getting the initial lab work was A HUGE ORDEAL. I was making phone calls constantly. We are supposed to do genetic testing but the insurance company won't approve it until the doctor sends them notes - so they've faxed him several times and I've called.............I don't know what to do. I'm really really sick not only with PANS but M.E./CFS and my mom just cannot help me as she is going through a divorce / separation of 30 year marriage. I was recently granted medicaid but I have no idea what benefits I may or may not have. Any tips would be greatly appreciated. I have a ton of fatigue and daytime sleepiness so everything is a herculean task. It'd be nice to find an advocate but I've been unsuccessful after contacting several people online. It's all very very stressful for me. Thanks. Link to comment Share on other sites More sharing options...
Hopeny Posted April 30, 2013 Report Share Posted April 30, 2013 Do you have Lyme? I asking because you are noting fatigue as a primary symptom. I believe igenex accepts Medicaid. You may want to google Yolanda from the real housewives story. She was first dx'd with chronic fatigue syndrome Link to comment Share on other sites More sharing options...
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