Joan Pandas Mom Posted April 24, 2013 Report Share Posted April 24, 2013 Hi. There will be two upcoming proposed legislation relevant to PANDAS brought to Senator Lovely's Office regarding PANDAS. Bill Title:An Act designating PANDAS/PANS Awareness Day Bill:#H2882 Committee Assignment: Joint Committee on State Administration and Regulatory Oversight Contact Number: 617-722-2140 And An Act relative to insurance coverage for PANDAS/PANS, Bill #H984, Joint Committee on Financial Services, contact # 617-722-2220. I called the office to see when the public hearing is set. It wasn't set as of 4/8/13. I am going to try to go and share our story. If you can, PLEASE write or call Senator Lovely with your story. If you can, please attend the hearing. Maybe someone can get on the floor and speak. Imagine if these pass and more families will have coverage for PANDAS. WOW! Link to comment Share on other sites More sharing options...
T_Mom Posted April 25, 2013 Report Share Posted April 25, 2013 This is amazing and wonderful! If only I lived in Mass. I would be there in a heartbeat-- thank you ALL who contibuted to getting this moving...what can we do to do this in other states??? Is there a protocol to do, could one be written up and distributed and we could take it, do it, and contact our own congressmen/women across the country? thanks Link to comment Share on other sites More sharing options...
Joan Pandas Mom Posted April 25, 2013 Author Report Share Posted April 25, 2013 I'm in NH. When I called Sen. Lovely's office, they said I still could speak at the hearing. Could you write an e-mail to her office with your story? Are you close enough to attend? Thank you so much. Link to comment Share on other sites More sharing options...
pandas mom Posted April 25, 2013 Report Share Posted April 25, 2013 It's great that so many people are getting involved with the effort. John Scibak is sponsoring the bill. The following are registered co-sponsers as of the filing deadline in January. John W. Scibak 2nd Hampshire Peter V. Kocot 1st Hampshire John D. Keenan 7th Essex Stanley C. Rosenberg Hampshire, Franklin and Worcester Ellen Story 3rd Hampshire Josh S. Cutler 6th Plymouth Garrett J. Bradley 3rd Plymouth James M. Cantwell 4th Plymouth Thomas J. Calter 12th Plymouth Sal N. DiDomenico Middlesex and Suffolk Carolyn C. Dykema 8th Middlesex Walter F. Timilty 7th Norfolk James M. Murphy 4th Norfolk Rhonda Nyman 5th Plymouth Karen E. Spilka Second Middlesex and Norfolk John J. Lawn, Jr. 10th Middlesex Marjorie C. Decker 25th Middlesex Steven M. Walsh 11th Essex We have been communicating with the Committee's to which we've been assigned for the two bills to determine our hearing date. We have filed for the 2013(14) Legislative Session so we may not get a hearing until next year. However, we have been told that we will have less than two weeks notice between the the scheduling of our hearing date and the actual hearing. So we need to make sure that we have all of our resources at the ready. Hopefully, we will be able to get these bills passed! We will post any information as this unfolds. Thanks everyone! Heather and Jacob Link to comment Share on other sites More sharing options...
Dedee Posted April 25, 2013 Report Share Posted April 25, 2013 Awesome! I am so proud of you ladies! If there is anything those of us in the south can do let me know. Dedee Link to comment Share on other sites More sharing options...
KaraM Posted April 30, 2013 Report Share Posted April 30, 2013 Talked personally to Sen.Joan Lovely at an event the other night. I believe another rep to contact is Mike Costello (D) Newburyport. He is on the joint committee of financial services. http://www.malegislature.gov/people/profile/mac1 Link to comment Share on other sites More sharing options...
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