Need ideas of what to ask Dr.T

[T_Anna]

I have a phone appt with Dr.T tomorrow. DS14 is in Augmentin XR, Azithromycin, Docycyline and Luvox (75mg). His PANS triggers are MycoP, Coxsackie & strep. We are 4 weeks post IVIG #2 with lackluster results. DS is in better spirits and seems better cognitively, but still goes to the bathroom for 3 hrs (down from 4) and won't shower, leave the house.

Should I ask about Plasmorphesis (sp?)

Try Valtrex or other anti-virals again?

 

I plan to ask about the genetic testing again.

 

Ptcgirl's analogy of a clogged vacuum made a lot of sense. I really feel like we need to push things harder.

 

Next Thursday I have a meeting with a psych and hope to have new ideas on that front too.

 

Thanks,

T.Anna