Teen PANDAS-Home Alone?

[T_Anna]

My DS 14 hasn't left the house (besides going to Dr.T on 2/11) since January 24. He is in a bad flare and we are 3 weeks post IVIG. He doesn't go to sleep until 2am or even later and sleeps all morning until 2 or 3 in afternoon. We have seen glimpses or our son, but are still waiting for some real progress. DH and I work, I come home around 3:40 a nervous wreck until I see he is OK.

 

Two questions:

1.Does/did anyone else leave their teen alone at home during a homebound flare?

 

2. Is leaving him home alone preventing him from getting better? Am I enforcing this day/night schedule since no one is home to wake him??

 

Thanks,

T.Anna

[Mary M]

My dd felt alone was better than with others.

 

There was nothing we could have done to change the sleep pattern until the healing reached a point that such a change could occur.

 

You do the best you can under the circumstances you are in....this is not a disorder for the faint of heart.

[kimballot]

The sleep schedule is a problem for many. My own DS15 just started back to school today after many months and is on a modified schedule where he goes to school from 11 am - 1:30 pm. I am holding my breath to see if he can get on this schedule as he has been up until at least 3 am (frequently even 6 or 7 am) at night in his bed - then sleeping all day. I think the schedule comes over time.

 

 

Regarding leaving the child alone - I have mostly left DS alone during the day because I know he is sleeping. When he is home, I do try to check in by phone when I can / have him text me when he wakes up / swing home to check on him, etc. There was a time in the past when I was concerned about him running away from home or hurting himself and I did not leave him alone then, relying on family and friends to stop in and check on him throughout the day or even stay with him when I was really concerned.

Edited March 12, 2013 by kimballot