melissamac5 Posted March 8, 2013 Report Share Posted March 8, 2013 Hi, I am new to this site. My 5 year old was diagnosed with PANDAS last year (an awful year) and has been on prophylatic antibiotics for 6 months. It is controversial to keep kids on antibiotics for so long and I am fearful that the strep/bacteria will become resistant to the antibiotics and then what... After doing a lot of research, I have been trying golden seal and olive leaf extract 2 x per day and probiotics in the middle of the day... Unsure yet how he is doing... I am curious about if others have tried natural antibiotics and with what kind of results. Sometime I feel so scared and hopeless... Always waiting for the shoe to drop... Thanks. Link to comment Share on other sites More sharing options...
Mayzoo Posted March 8, 2013 Report Share Posted March 8, 2013 I have my daughter on Olive leaf extract, Propolis capsules, green tea capsules, and coconut oil. She is doing pretty well on these to the point I am going to try to take her off her abx soon. She is much more stable with these added than before I added them, so I am hoping to slowly remove abx successfully. She just had a T & A as well, with a positive culture for a bacteria that is rare in the tonsils, so I am waiting a bit longer to wean her off abx. Link to comment Share on other sites More sharing options...
Mayzoo Posted March 8, 2013 Report Share Posted March 8, 2013 Hi, I am new to this site. My 5 year old was diagnosed with PANDAS last year (an awful year) and has been on prophylatic antibiotics for 6 months. It is controversial to keep kids on antibiotics for so long and I am fearful that the strep/bacteria will become resistant to the antibiotics and then what... After doing a lot of research, I have been trying golden seal and olive leaf extract 2 x per day and probiotics in the middle of the day... Unsure yet how he is doing... I am curious about if others have tried natural antibiotics and with what kind of results. Sometime I feel so scared and hopeless... Always waiting for the shoe to drop... Thanks. Have you read Saving Sammy yet? He was on abx for several years. I read one site that said kids with PANDAS should/could stay on prophylactic abx until they are 21, but I am trying to get my kiddo off them as well. Many medical conditions require long term abx. Rheumatic fever, MS, etc..... I do not know about now, but ten years ago it was not at all uncommon for kids with moderate-severe acne to be on abx for years, which is one reason I get frustrated when I see that some kids here cannot get abx with severe symptoms. Link to comment Share on other sites More sharing options...
Hopeny Posted March 8, 2013 Report Share Posted March 8, 2013 An accupuncturist I saw used propolis for her kids but said anytime it was strep she would use antibiotics. My DD has PANDAS/Lyme/Myco, I am using herbal anti-microbials in addition to Rifampin & Zith and hope to switch to 100% herbals ovber the summer. I am using Samento from Nutramedix and am looking at adding either Cumanda or Banderol. The Samento seems to have helped but I have not tried it without the abx yet. Link to comment Share on other sites More sharing options...
pr40 Posted March 8, 2013 Report Share Posted March 8, 2013 "he strep/bacteria will become resistant to the antibiotics and then what" I don't think it works that way. Bacteria become resistant over generations and many many different carriers, not in one person. Should they indeed become resistant,you would change abx. The purpose of abx is not only to kill existing bacteria but also to PREVENT NEW infections. In addition, abx seem to have anti-inflammatory effects. Link to comment Share on other sites More sharing options...
Mayzoo Posted March 8, 2013 Report Share Posted March 8, 2013 An accupuncturist I saw used propolis for her kids but said anytime it was strep she would use antibiotics. My DD has PANDAS/Lyme/Myco, I am using herbal anti-microbials in addition to Rifampin & Zith and hope to switch to 100% herbals ovber the summer. I am using Samento from Nutramedix and am looking at adding either Cumanda or Banderol. The Samento seems to have helped but I have not tried it without the abx yet. My hope is to use exclusively natural for prophylactic and prevention, but traditional abx if an actual infection arises. So far, I am happy with the propolis caps. They are the most recent addition, and this combo has help to get my giggly girl who sleeps through some of the nights back for the greater percentage of the time. We have very few emotional liability issues any more (of course with onset of puberty, I am not expecting complete emotional harmony these days ). Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted March 9, 2013 Report Share Posted March 9, 2013 I know long-term abx use is controversial among some in the medical community, and even some of the leading PANDAS/PANs docs I've heard speak do not embrace a long-term prophylactic regimen, including Dr. Swedo. However, I specifically asked the "creating resistant strains of bugs" question of a panel at last summer's IOCDF conference with included Drs. Swedo, Latimer and Murphy. Across the board, they said their issue was NOT with creating abx resistance, but rather c-difficile. They're concerned mostly about c-diff. We use olive leaf in our house, and DS also gets a daily dose of coconut oil. He has made it through the winter with only one cold (knock on wood) -- no flu, no strep. Link to comment Share on other sites More sharing options...
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