Mayzoo Posted February 6, 2013 Report Share Posted February 6, 2013 He is an ENT in Dallas and Plano TX, and we saw him today. He is familiar with PANDAS but does not appear to be thoroughly educated on it. He believes it exists, but he seems to believe too many patients are being diagnosed with this that do not fit "the criteria" (not sure which he uses). He came in a bit skeptical IMO, and asked some questions before he agreed our daughter in fact sounded just like a PANDAS case. All we we went for was a recommendation on her tonsils, not general PANDAS treatment. He wants to go ahead and remove them (full T&A), but says he does not normally culture them, but he will if we really want him to. Just wanted to pass on the information in case it helps anyone. Link to comment Share on other sites More sharing options...
lfran Posted February 6, 2013 Report Share Posted February 6, 2013 Hi Mayzoo. Just saw your info at the bottom and wanted to ask about the strabismus. My DS11 also has bilateral strabismus -- it is Duane's Retraction Syndrome, which he inherited from me. Just curious if your DD's strabismus is Duane's. Also, I have always thought that some eye positions are triggers for tics. Have you noticed any correlation that way? Thanks! He is an ENT in Dallas and Plano TX, and we saw him today. He is familiar with PANDAS but does not appear to be thoroughly educated on it. He believes it exists, but he seems to believe too many patients are being diagnosed with this that do not fit "the criteria" (not sure which he uses). He came in a bit skeptical IMO, and asked some questions before he agreed our daughter in fact sounded just like a PANDAS case. All we we went for was a recommendation on her tonsils, not general PANDAS treatment. He wants to go ahead and remove them (full T&A), but says he does not normally culture them, but he will if we really want him to. Just wanted to pass on the information in case it helps anyone. Link to comment Share on other sites More sharing options...
Mayzoo Posted February 6, 2013 Author Report Share Posted February 6, 2013 (edited) Hi Mayzoo. Just saw your info at the bottom and wanted to ask about the strabismus. My DS11 also has bilateral strabismus -- it is Duane's Retraction Syndrome, which he inherited from me. Just curious if your DD's strabismus is Duane's. Also, I have always thought that some eye positions are triggers for tics. Have you noticed any correlation that way? Thanks! He is an ENT in Dallas and Plano TX, and we saw him today. He is familiar with PANDAS but does not appear to be thoroughly educated on it. He believes it exists, but he seems to believe too many patients are being diagnosed with this that do not fit "the criteria" (not sure which he uses). He came in a bit skeptical IMO, and asked some questions before he agreed our daughter in fact sounded just like a PANDAS case. All we we went for was a recommendation on her tonsils, not general PANDAS treatment. He wants to go ahead and remove them (full T&A), but says he does not normally culture them, but he will if we really want him to. Just wanted to pass on the information in case it helps anyone. She has had hers since birth. It has always been attributed to a birth trauma. Her left is much worse, and she is almost blind in that eye as well. No one has ever mentioned Duane's, but we are going to a new eye doctor at the end of the month and we will ask about that. No one in the family has strabismus, but her daddy has a "lazy eye lid". The only tic my kiddo has is a vocal tic, and that usually only happens with a low grade fever or when she is very tired. Thank you for asking. Edited February 6, 2013 by Mayzoo Link to comment Share on other sites More sharing options...
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