We're getting more desperate...

[norcalmom]

I didn't read the whole thread in detail, so it may have been discussed already - but many find Advil for 3 days every 4-6 hours, very hopeful. Treat it like a fever.. And might want to start with a bit higher does to start. And anti-inflamatory foods for a few days.

 

If your child had pneumonia, you should keep track of her mycoplasma IgG. Do you know what type/strain of pneumonia she had? Doctors will tell you that if the IgM is negative, that she doesn't have it - that is incorrect. The IgG has to go down - if it is in the positive range, you need to take more than one blood test to see which way the titer is moving.

 

I think you were the person that also asked about IVIG ? DS has had 2 IVIGs. They were TREMENDOUSLY helpful to him. He never returned to the state he was in prior to the first one. So - it didn't "cure" him but it treated him - while we work o the cure. My son has chronic mycpplasma - which we didn't find until after the second IVIG (he had no "typical" pneumonia symptoms, so we never checked ) - and he had a climbing IgG for mycoplasma pneumonia while on full does Azithromycin for 2 years. So, he is highly functional, but still ahs one OCD thing that is pretty bad. But - he rarely has any of the other symptoms anymore (the list was LONG) - when he does, he can usually identify that he is felling "pandas-y" and I give advil and watch his diet for a few days.

 

But I do have to say that prior to the IVIG, I don't think the advil would have done much, but I dunno because we didn't know about the advil back then.

 

hope the storm passes soon..